Panic!!

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Panic!!

Postby sarahtonin on November 4th, 2003, 10:53 am

I was reading through the old posts and read somewhere that neurologists will hit or touch a muscle and if it twitches that is a bad sign. I just hit the muscle on the bottom of my right foot which twitches A LOT and it started to twitch - v faintly. Is this a bad sign? Should I call my neuro and get an EMG done?

Any advice appreciated.
:cry:
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Postby Jenn311 on November 4th, 2003, 11:35 am

I really don't think it's a bad sign. You may want to call your neuro and check, but I can do that sometimes, too. When I went to see my neuro she tried the same thing, and all she said was that sometimes if you hit a muscle it will twitch.
But she didn't say anything about it being bad.

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Hey

Postby KERRI on November 4th, 2003, 12:31 pm

That only means that there is a true fasciculation. Usually from what I understand you do not need to hit the muscle to make it twitch, in Als the patient is usually lit up like a christmas tree. I heard that from a neuro.

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Postby Craig on November 4th, 2003, 1:24 pm

Sarah,

I personally wouldn't worry about this. One of the neuros I saw before kept trying to tap different parts of my body to provoke the fasciculations which he was finally able to do (on the instep of my foot). He just looked at it and said "Yup, that's a fasciculation alright" and went on with the rest of his examination.

I don't think you should worry about this, but if you are truly concerned about it, I'd go and see a neurologist for an expert opinion.

Take care,

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Postby nickic on November 4th, 2003, 2:52 pm

Hi Sarah

Don't panic! I think if you are really worrying about it then you should call your neuro and ask him what he thinks. There's nothing to making a phone call and it will make you feel a lot better. When I went to see my neuro in June (I have lost his card but I think he was called Dr Oliver on Harley Street) I was constantly fighting the urge to call him as I was worried about one symptom, then another etc. Anyway 5 months later I have calmed down a bit and have noticed that my twitches are a lot less frequent. Sometimes I don't even notice them at all during the day and I think that is a lot to do with the fact that I am not obsessing about every little twinge. However I do have bad days but I find just coming on this site keeps me sane!!

Anyway give him a ring - you'll feel better for it!

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Postby sarahtonin on November 5th, 2003, 10:10 am

OK, am calming down!

I spoke to my neuro's secretary, who spoke to my neuro. He is on holiday next week but said that I could either go and see him when he got back or he would arrange for me to have EMG/MRI if I did not want to wait - but he didn't think they would show anything. So I have arranged an EMG for next Wednesday and will try not to panic anymore (until then).

Thanks everyone for your support :)

Ironically, have been flicking my foot all afternoon and not a twitch to be seen 8)

What will they do in the EMG? I believe it hurts (though probably not as much as constantly flicking the bottom of my foot :lol: )

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Postby Pole on November 5th, 2003, 10:18 am

Hello
during emg they will put needle into your muscles and ask you to relax the muscle and next to stretch slowly and next to stretch as strong as you can. They will test that way a few muscles propably.

You shouldn't be afraid. It's not painfull. Maybe bloody a little :)

I hope your emg will be normal. keep us informed

good luck on wendsday

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Postby sarahtonin on November 7th, 2003, 5:35 am

GGGRRRRRHHHHHHHHH :x

Just spoke to neuro's sec again to check they're doing EMG on Wednesday and was told NO! They are only doing nerve conduction study, not EMG. I said can't I have EMG - NO, doc says only nerve conduction for tingling in the foot. Maybe more tests later if any abnormalities but NO EMG now - WHY WON'T THEY LET ME HAVE EMG NOW?

SORRY! Just had to get that off my chest - so don't expect EMG results next week - sorry Marcin :wink: - I shall keep fighting for it though.

Nicki - did your Harley Street guy do EMG?

Good news if right foot hasn't twitched for two days yet, despite lots of hitting, maybe it was just a hot spot :)

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Postby Pole on November 7th, 2003, 6:21 am

Sarah,

do you have other twitches or only this one foot. I think feet twitching is nothing serious.

Few months ago my wife's right foot was twitching for abot 10 days (not non-stop, but very often). I saw it - she showed it to me over 20 times - it was twitching on the bottom side of foot and this twitching made her little foot finger move.
She also has calves twitching from time to time - I also saw it.

It's very simillar to my twitches, but my twitches are all over my body and occur many times more.

I don't say that my wife is also BFSer cause she's not. Her foot twitches lasted about 10 days and completely gone. She was totally relaxed about these twitches despite she knows very well what twitches may be (I told her :)

I think her twitches was an illustration of what every neuro says: "Everybody twitches from time to time" and it was really nothing to worry.

I wonder how many of us is doing big problem from NOTHING (I don't mean that's you Sarah).

regards
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Postby sarahtonin on November 7th, 2003, 6:48 am

Hi Marcin

I definitely twitch more than "normal" - probably about 100 times per day (good days are less but I don't know if that's because I don't notice or because I actually twitch less - I would say a good day is about 20 twitches).

The foot twitch freaked me out because I could make it twitch by sitting in a certain position and hitting it and because it was small and I couldn't really feel it. It seems to have gone now.

My boyfriend also twitches - probably like your wife. I have seen his toes twitching and felt other muscles twitching but he doesn't even notice!! The other day he had a twitch in his arm that lasted for 5 minutes and he finally acknowledged that it is VERY ANNOYING!! I showed him one of my twitches once (it is v difficult to find one to show anyone) and he was completely unimpressed :D

so, I think I am more likely to be a BFSer as opposed to a "normal" person but a low level one.

This also answers your next post :wink:

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Postby sarahtonin on November 7th, 2003, 6:51 am

And, yes, my twitches are EVERYWHERE (though probably 80% in my legs).
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Postby nickic on November 7th, 2003, 1:45 pm

No my guy did not give me an EMG. I had a spinal MRI though which was normal because at the time I was more worried about MS - I did mention what I now know to be a type of twitching though, I actually described it to him like it was more like insects crawling around my ankle and I also mentioned twitching in my thighs. He gave me a thorough neuro exam and said he was 100% sure that I was fine. After I left him and went back to Edinburgh my twitching became more widespread and I went to see my gp up here who has been great. He seriously thinks it is related to anxiety which I kind of believe now as my twitching has lessened a great deal since being on Zoloft and calming down about the whole thing.

I'm actually quite glad that I didn't have an EMG as I am sure that it would have freaked me out even more.

My gp has said that he will refer me to a neurologist up here if I want further reassurance but unless things get worse then I think I am quite happy to live with the occasional twitch.

Have a good weekend!
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Postby sarahtonin on November 11th, 2003, 4:22 am

Oh [email protected]$£*&^ - the foot has started again :cry: - a different place but the right foot like before. This concerns me because I have problems with my right leg anyway due to hip pain and I have physio. Sometimes I feel weak on my right leg and this morning I noticed that if I try to resist pushing down my big toes the right toe shakes but the left one doesn't. HELP! I heard that neuros won't do an EMG of the foot so does that mean that if I can persuade them to do an EMG they won't do it on the foot? :?

Sorry for the relapse - had had a good weekend!

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Postby sarahtonin on November 11th, 2003, 4:24 am

BTW Nicki - when you say you have the "occasional" twitch how often do you mean?
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Postby nickic on November 12th, 2003, 2:31 pm

Hi Sarah


The occasional twitch is literally that. I feel it when I want to if that makes any sense. If I am busy I do not notice anything. If I am not doing anything I notice the twitches. It is now as simple as that.... I have asked my gp if I can go and see a neuro muscular specialist up here so that I can stop this nonsense once and for all. He is going to refer me but I will pay for it privately. Not sure how much it will cost but I don't care anymore...

Anyway... I'll keep you informed of any developments.

KR

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