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PostPosted: May 5th, 2008, 10:32 am
by TattooedMommy
I noticed today has a lot of anxious people as well as yesterday- INCLUDING MYSELF!!!!!!!!! How about in this thread we all post some notes are neuro have said. Sometimes just reading those reassurances make us better. Reinforcement, etc.
I'll Start.

ALS is very rare.
It almost ALWAYS begins with true clinical weakness, not twitching.
By the time one is twitching w/in a month give 2 there will be definate clinical signs not only to you but your neurologist.
If you have a good clinical exam it is HIGHLY unlikely you dont have ALS..same w/ EMG esp.
If your Doctor /Neuro tells dont have ALS then YOU DONT!
There is a lot of misinformation on the internet, outdated things etc. Dont beleive everything you read *THIS WAS STRESSED TO ME BY MY NEURO)

It always makes me feel better to see positive posts. Maybe we can start the week off right!!! In reminding ourselves were ok! :mrgreen: