Hi to all,
I have been here, on & off, for the last 8 months. I started twitching all over back then-- some days worse than others. Then I decided to forget about it [with the words & support from everyone here] and I got better.
In the last few weeks, though, the twitching is back -- but just mostly in my left foot and ankle. Sometimes I can sit and watch the skin under my foot jumping. Some days it's quieter and other days, like today, it's just out of control. I also feel this weakness -- is it "perceived" weakness? -- I don't know. Some mornings I wake up and I could swear my lower left leg & foot are weak. Then the next day, or later that same day, it's better.
Recent neuro visit said everything was okay -- the doctor said he isn't worried. I'm having another EMG next week [had one 4 months ago]. He said to do it just to be sure.
Other than this, I do have trembling now & then in my hands -- that also comes & goes. It seems worse later in the day and usually when I press against something. But it's not constant. And on & off tingling in my left foot. Oh, and I almost forgot -- fatigue! Sometimes bearable, other days I just want to lie down all day and sleep, or try to.
After extensive bloodwork a few months ago, I found out that I have had Epstein Barr in the past -- apparently it's one of those things that stays in your system and could reactivate. I've also wondered, beside BFS, about fibromyalgia, or some autoimmune disorder. This all started when I had a baby one year ago. I never had any neuro issues before. I have read that autoimmune disorders can be triggered during postpartum periods -- the connection is just too obvious since tremor and twitching [along with tingling and numbness] started 5 weeks after I delivered my son.
Lastly, the biggest monster in my closet is the fear of MS. When my foot is really twitching and tingling [I'm still trying to decide if this is from pain that I have in my lower back], and I "feel" this weakness on & off, along with major fatigue, I really do wonder if it's not all related to MS. Then that cycle starts -- the fear sets in and I feel like my life is over. I hate when my mind goes there. And MS can be so difficult to diagnose -- it can take years to figure it out. All this worrying is not good. And there are times when I let it all go and I'm okay, but inevitably the symptoms come back or get worse, and the fear starts again.
Thanks for all of the support here. This board is a Godsend. I can relate to so much of you here.