central sleep apnea

General Topics

Moderators: JohnV, Arron, garym

central sleep apnea

Postby Tb12 on November 1st, 2018, 8:39 pm

Hi guys,
8 years of symptoms, had so much tests and seen so many neurologists and neuromuscular specialists and still no answers..
emg of limbs and cheek clean..

Symptoms
Fasciculations
Cramps
Weakness
Tremors under muscle stress
Nerve pain
Fatigue
Joint pain
Muscle tightness, maybe some spasticity
Bladder issues
Urological and sexual issues
Hand issues..

now I'm pretty sure i have central sleep apnea, it came out of no where, its been relentless for 2 months, i can barely get any sleep as just as i start to pass out i jerk awake, or simply just awaken with the sensation that my body has stopped breathing.

i also am noticing that some of my body parts when i wake are tense and contorsioned, like my back is tense and arched? or my lips are turning upward, weird stuff like that.

does this sound like ALS? could it present this way?
Tb12
Senior Member
Senior Member
 
Posts: 86
Joined: March 15th, 2013, 8:00 pm

Re: central sleep apnea

Postby Tb12 on November 3rd, 2018, 7:29 am

Anyone on here?
Tb12
Senior Member
Senior Member
 
Posts: 86
Joined: March 15th, 2013, 8:00 pm

Re: central sleep apnea

Postby TwitchyDoc on November 4th, 2018, 6:34 am

You really have to get a sleep study done so that your breathing pattern can be evaluated. Even if it is non-obstructive sleep apnea, there are other causes too, it is not pathognomic for MND.
Get it checked, any breathing problem warrants proper examination.
I knew a person with fasciculations and central sleep apnea, he had to use an oxygen mask for sleep but as far as I know he did not diagnosed with anything. Sleep apnea might be idiopathic, although it is not that common.
TwitchyDoc
Saint
Saint
 
Posts: 1182
Joined: August 7th, 2010, 7:30 am

Re: central sleep apnea

Postby Tb12 on November 4th, 2018, 11:53 pm

Thank you for replying twitchydoc,

So do you feel that after 8 years of symptoms als wouldnt present this way?

I can still do cardio etc, its only breathing issues when im sleeping, coupled with lots of myoclonic jerking
Tb12
Senior Member
Senior Member
 
Posts: 86
Joined: March 15th, 2013, 8:00 pm

Re: central sleep apnea

Postby TwitchyDoc on November 5th, 2018, 4:26 am

In most cases, MND-related breathing issues start with dyspnea, especially on exertion first.

Regardless the origin, you need to get it checked, your problem might be obstructive. Especially if your sleep is not restorative and/or you get headaches in the morning. Once the sleep study is done, you will not exactly what you are dealing with.
Docen
TwitchyDoc
Saint
Saint
 
Posts: 1182
Joined: August 7th, 2010, 7:30 am

Re: central sleep apnea

Postby misterjuanperalta on November 21st, 2018, 10:12 pm

Ask your neurologist, but I think your cerebellum may be producing your symptoms. My new diagnosis is episodic cerebellar ataxia with myokymia (or tetany), secondary to GAMT deficiency. The cause is guanidine toxicity. The trigger is animal protein. Treatment is at least Creatine Monohydrate or Alpha-GPC.

Request the following tests:

Organic Acids
Amino Acids
Guanidinoacetate
Ammonia
PTH w/ Calcium
Calcium RBC
Potassium
Potassium RBC
Folate RBC and Serum
misterjuanperalta
Saint
Saint
 
Posts: 517
Joined: August 21st, 2014, 7:27 am

Re: central sleep apnea

Sponsor

Sponsor
 


Return to General Topics

Who is online

Users browsing this forum: No registered users and 6 guests