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Still here

PostPosted: April 4th, 2016, 8:07 pm
by carlos
Hi. It has been a long time since my last visit to this forum. It has helped me a lot in my first years of BFS, when I, like most people who come here, was scared about having ALS.

Of course, I had all the tests and saw several neurologists. No ALS. I'm not free of having it someday, like everyone else. But not from twitching.

And I'm having BFS since... August 2008! Almost eight years now.

So, for the newcomers: keep cool if you have no (real) weakness. Not one that comes and goes, but one that comes and stays forever and grows up. See your doctor, make your tests and... live your life! You are absolutely not alone with this.

Re: Still here

PostPosted: July 16th, 2016, 5:24 am
by muppetdog