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Diagnosed with Kennedys disease.

PostPosted: November 1st, 2015, 8:55 pm
by Tb12
Hi guys,

Been on here for a few years now. The other day I got my diagnosis of Kennedys disease, I am only 30 so wish it came on a bit later on life lol but at least it's not ALS..

Thank you to everyone for all the support and information over the years, it's been a blessing.

Trent.

Re: Diagnosed with Kennedys disease.

PostPosted: November 2nd, 2015, 4:02 am
by Yuliasir
Hi Trent,

I wish you a lot of strength to meet the fact you have quite serious disease manifested in young age. And I hope your story would still be a supporting one - many of our fellows just do not accept internally the idea that there are other diseases causing muscular and neuromuscular problems, beside ALS.

Hold on and have my thoughts with you.

Hugs
Yulia

Re: Diagnosed with Kennedys disease.

PostPosted: November 2nd, 2015, 5:08 pm
by TwitchyDoc
So sorry to hear its MND but at least it is the "benign" one. I am too expecting some bad knows following my latest swallowing results. Good luck!

Re: Diagnosed with Kennedys disease.

PostPosted: November 2nd, 2015, 6:30 pm
by Tb12
Thank you Y your a great support..

Thank you twitchy doc, what are you suspecting?

Re: Diagnosed with Kennedys disease.

PostPosted: November 3rd, 2015, 7:37 pm
by Little Lost
Hi Trent,

Sorry to hear your news, and I hope all goes well with you. Challenges ahead, but you can do this.

Hx

Re: Diagnosed with Kennedys disease.

PostPosted: November 3rd, 2015, 8:08 pm
by Dual_CoRed
Hang in there Trent you can fight this!!!

Re: Diagnosed with Kennedys disease.

PostPosted: November 5th, 2015, 6:54 am
by Xina535
So sorry, Trent. My heart and prayers go out to you. Please take good care of yourself.