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More specific diagnosis than BFS

PostPosted: October 26th, 2015, 8:29 pm
by misterjuanperalta
Hi all,

I recently obtained new bloodwork results that demonstrated serological evidence for celiac disease as being present. Wheat allergy blood tests were normal. It is likely my BFS is a result of gluten neuropathy, aside from other (borderline) sugar/insulin metabolism problems. Sural nerve, skin and muscle biopsies are pending for additional confirmation.

Read how biopsies are relevant here: http://archneur.jamanetwork.com/article ... id=2279878
Read Getting to the root of my BFS: viewtopic.php?f=3&t=21762#p163251
Read Health Advice: viewtopic.php?f=3&t=21823#p163509

Re: More specific diagnosis than BFS

PostPosted: October 29th, 2015, 8:01 am
by Xina535
I AM SO UPSET THAT DOCTORS LET YOU GO ON FOR SO LONG AND MISSED A SIMPLE BLOOD TEST FOR CELIAC DISEASE WHICH YOU HAVE!!!!

Another BFSer was confirmed with adrenal fatigue, but for the first 2 years, was called "psychosomatic" and "it's just anxiety".

HELLO!?!?

What purposes are these doctor's serving!? Everyone needs to take THEIR request for blood work to their doctor or to the lab directly and never ever wait for any doctor to try to find any answers for you.

What if you misterjuan just continued living the way you are with celiac disease or another BFSer's adrenal fatigue going unnoticed? GGGGGRRRRRRRRRRR I could flip cars! :evil: :evil: :evil:

Re: More specific diagnosis than BFS

PostPosted: October 30th, 2015, 6:38 pm
by SecretAgentMan
Celiac is about as extreme as a gluten intolerance can get, but you can be gluten intolerant without having Celiac. I had gluten issues but do not have Celiac, and it was a contributing factor to my BFS symptoms. Find more info and studies on non-Celiac gluten intolerance referenced here: http://neurotalk.psychcentral.com/showthread.php?t=1872

Re: More specific diagnosis than BFS

PostPosted: November 11th, 2015, 8:48 pm
by misterjuanperalta
Check out this case presentation: viewtopic.php?f=3&p=163536#p163536