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5 year update/EMG today

PostPosted: December 5th, 2014, 4:14 pm
by nickston
I guess I qualify as an old-timer now. This month marks 5 years since I saw/felt that initial funny twitch on the sole of my foot. Was getting ready to go to a Christmas party. 5 years and tons of different weird symptoms and anxiety problems later, I'm still doing fine, and I had an EMG today that confirms it. A few interesting things...my neuro has performed thousands upon thousands (about 23,000 by his count over the course of his career) of EMGs and was trained at Harvard and Mass General. He told me that he has plenty of patients with BFS. I told him that we have this ongoing debate on the forum about how common BFS is, and he said that at least in his practice, he sees lots of BFS patients. "Very common," I believe were his words. He said that they are all the anxious type. He started explaining things about sodium/potassium gates or something along those lines and that the threshold excitation required for BFS'ers' nerves to fire are less than in "normal" people, but there's nothing wrong or sinister about that. My eyes were kind of glazing over at that time anyway, so I didn't really understand it all.

He also said there's a difference between benign tongue twitches and pathological ones. He said he noted a benign twitch in my tongue but it was definitely non pathological and was related to my overall BFS. He did a reflex test on my knees and they were fine. He EMG'd my arms, back and tongue, all fine. He heard some static on some of them but said that an experienced EMG neuro will understand the difference between good and bad static. Something about being really close to the "m plate" or something. He also said static is sometimes unavoidable, as in the case of the tongue, where it's very difficult to relax the muscles, but even then an experienced EMG tech will be able to pick apart the good and bad static types.

Sorry for the random, disorganized nature of the post. Just thought I would update in the hopes it would provide reassurance for someone. I'm an old timer and I had a clean EMG today, but sad to say that my anxiety is the root of a lot of problems and that I will probably continue to post/ask questions on here in the future as different symptoms pop up. I've just kind of accepted the fact that I'm a hypochondriac and that's life. I mean, I've been seen by probably 6 different neuros/neuro residents/EMG neuros, had 4 EMGs, all point to BFS, and yet I know in the future I will still freak when new weird symptoms pop up. I even had a very well known and respected ALS specialist have me come in just so he could show his resident a classic case of BFS. Sigh - C'est la vie.

Re: 5 year update/EMG today

PostPosted: December 5th, 2014, 7:26 pm
by misterjuanperalta
What was the difference between pathological and benign tongue twitches?

Re: 5 year update/EMG today

PostPosted: December 5th, 2014, 7:31 pm
by nickston
I dont recall what he said about the difference unfortunately. It was kind of a blur. Sorry.

Re: 5 year update/EMG today

PostPosted: December 5th, 2014, 7:35 pm
by misterjuanperalta
What is the behavior of your tongue twitches? Mine happen mostly when petruded. Very seldom in mouth and pulling on one side.

Re: 5 year update/EMG today

PostPosted: December 5th, 2014, 7:44 pm
by nickston
Ive never seen them myself. But i feel them. They just feel like regular twitches when resting in the mouth.

Re: 5 year update/EMG today

PostPosted: December 6th, 2014, 1:04 am
by Ghayes420
Nickson. Thanks for posting and its good to hear from old timers.

Have any of your EMG's over the five year span ever have fasciculations detected and reported on the EMG? I am just curious.

Thanks and thanks again for reporting.

Re: 5 year update/EMG today

PostPosted: December 6th, 2014, 1:41 am
by nickston
Hey man

Yep ive had fasics reported on emg. Didnt ask about them on todays visit as i was just happy to get an "all clear" but my emg from 2013 was clean except for fasics.