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Nasty Looking MRI.

PostPosted: October 30th, 2014, 2:15 pm
by misterjuanperalta
Spinal Stenosis confirmed by MRI Lab Doctor.

Re: Nasty Looking MRI.

PostPosted: October 30th, 2014, 6:20 pm
by RIno468
Sorry -- cant help you translate your MRI, but a "bad" MRI is "good" news considering the obvious correct?

Re: Nasty Looking MRI.

PostPosted: October 30th, 2014, 7:03 pm
by LKP1231
Exactly RIno

Re: Nasty Looking MRI.

PostPosted: January 12th, 2015, 11:50 am
by BFSBurger
I recently stumbled on a theory that might have some merit, but we won't know for another 200 years I'm sure.

A lot of folks here may have many different "core" causes for their BFS. But several people I've interacted with have spinal issues. Confirmed, diagnosed spinal issues.

I often wonder if damaged spinal structure (whether it be disk degeneration like I have, spinal stenosis, past spinal injury, etc) can create an inflammatory environment in the spinal column.

When there is a constant inflammation anywhere in the body, the immune system will react by "upping" the activity in that area to address the inflammation. Whether it thinks there's an infection there needing antibodies, or maybe a typical case where ongoing inflammation can result in an autoimmune response. Since this area clearly controls the entire body's nerve system, and muscle firing systems, etc .... who knows if that inflammation is just being triggered, resulting in constant migrating twitches and other symptoms. I think most people here have more than just twitching, and a lot of people here deal with nerve and muscle related symptoms. So maybe all the activity going on in the spine is the culprit. At least for some here. Fun to explore ideas anyway.


Re: Nasty Looking MRI.

PostPosted: January 12th, 2015, 12:51 pm
by Ghayes420
I think you could be on the right track. I too have some minor findings on my cervical MRI. Nothing serious according to the neuro.

However, if your theory holds true, that there may be some inflammation in the spinal area, then that would explain the following...

When I did a one week course of Prednisone, my twitching went down to almost zero. That's daily, 1000's of fascics, to almost none in the week I was on the Prednisone. This would help confirm your hypothesis that there may be inflammation in the spinal area. I think it is a good hypothesis and I will be mentioning it when I see my neuro this week.

Re: Nasty Looking MRI.

PostPosted: January 12th, 2015, 9:21 pm
by leaflea
I concur. My full back MRI had a bunch of bad findings also and considering my degree of scoliosis etc, it is remarkable I don't have more back complaints. The internal tremor almost feels like the bone vibrating against the cord and this is what MRI shows - contact, but not compression. So, the scoliosis doc says it cannot be causing these symptoms. I respectfully challenge him to tell me what is causing the symptoms? I think he burden of proof is on the doctors to disprove our theories. At least we have a theory in stead of a shrug and a head scratch. Different members here and even some of their doctors do attribute symptoms to the issues in the back...who knows? But I think it is a valid hypothesis anyway - until proven false.

I also can attest to dramatic decrease in symptoms when on a prednisone "burst" for a week for an unrelated condition (or maybe it was related - most things seem to be and make all body systems "haywire")

Re: Nasty Looking MRI.

PostPosted: January 13th, 2015, 8:28 pm
by Cobber
Stenosis diagnosis for me too. I've written a bit about it on my previous posts. I'm 2 years in now with nonstop twitching in my left calf all day and night for 2 years. The left calf atrophy and big toe weakness hasn't progressed but hasn't improved either. Still it doesn't stop me from doing exercise and I was recommended to keep the remaining muscle strong. So staying active seems to do the trick. I just look a bit odd with a very skinny left calf on an otherwise strong body :)

For me I'm still unsure as to why the twitching started when it did. Stenosis didn't start 2 years ago on a certain obviously crept in over years and years and as a result my left calf has atrophied gradually and my big toe won't lift up (pushes down fine!). Since it never impacted my lifestyle I never noticed until the twitching started for whatever reason.

Maybe coincidentally...... I had influenza for the first time in 10 years and it was 5 days later that the muscle twitching started. Probably a coincidence though.......but you guys may be on the right track about some autoimmune or hyperactive (confused nerves) due to the stenosis ...I don't worry about the twitching anymore anyway. I'm just concentrating on staying active so the muscle I have left doesn't weaken further.

Re: Nasty Looking MRI.

PostPosted: January 14th, 2015, 12:54 am
by Yuliasir
well, as fa as I know, the only autoimmune case of spinal stenosis is so called Bechterev disease (also known as Strumpell-Marie disease) but I do not see you develop typical symptomes - like lumbar pain, more spine and lumbar pain in rest than during activity. increasing rigidity in the spine and back muscles etc. Twitching by the way is not in the list.
However SMD (also called ankylosing spondylitis) may develop for a long time, without any rheumo/inflammation markers in the blood, so genetic analysis is now recommended.

Re: Nasty Looking MRI.

PostPosted: January 16th, 2015, 6:31 am
by raindog
Multi level cervical disk degeneration at all levels. Bulging herniated disks (stenosis at L4 L5 S1) . My neuro said it was a red herring insomuch as saying it was not the cause of my problems. I had a referral to an orthopaedic spine specialist who concurred that the degree of stenosis would not be causing the amount of symptoms i was having.