Page 1 of 1

Lactic Acid - Twitching

PostPosted: August 25th, 2014, 4:40 pm
by Pascal35
Hi Guys,

I just came back from a neuromuscular specialist. I went for the 3rd time over the past 9 months.
The good news is that actually my total strength is improving over the period of time so i am quite happy because if there was a possibility of ALS this wouldn't happen.
Also she measured my Lactic Acid and it was very high - 19.1 - She told me that high lactic acid can create stress, anxiety, muscle tense and twitching...
So here we are.
Has anyone else from you ever heard about this possibility for our twitching?

Re: Lactic Acid - Twitching

PostPosted: August 25th, 2014, 8:58 pm
by Steph
Interesting. Lactic acid is often elevated in metabolic and mitochondrial disorders, which I have often wondered about in my own case. I have a suspicion that some of us may have a very mild mito or metabolic issue that causes these symptoms. I suspect the link only because of a strange coincidence- which is a very long story.

When my daughter was 3 months old, she developed a down gazed evoked upbeat nystagmus. When I noticed the abnormal eye movements, I took her to the ER at our local Children's Hospital because I thought she was having a seizure (so did the attending ER physician). This happened on a Friday evening and we were admitted overnight. The following morning, the chief children's neuro at the research and teaching hospital actually came in on his day off to examine her. He convinced the radiologist to also come in that morning and they ran MRIs and an EEG. Everything was normal. They also ordered a full metabolic panel which came back with a few elevations not normally diagnostic of any metabolic disorder but also not within the average range. The only findings of significance were an elevated blood calcium level and a UTI, neither of which could have caused the abnormal eye movements. We were dismissed from the hospital that same day and sent to a pediatric neuro-opthamologist for follow-up. He reviewed the records, examined her briefly and simply said "I've seen this before, it will likely disappear in a couple of months". It did disappear, but I had a difficult time moving on with no explanation because in the three day interim between our dismissal and follow-up appointment I had obsessively researched causes of vertical nystagmus and everything I found suggested the cause is either a degenerative neuro disorder or tumor (there was one study by Good, et al. that found a small number of infants with transient idiopathic nystagmus that fully resolved, but there was no long term follow up on those children to determine if they developed any other issues). My four years of excessive research led me to believe it was possibly related to a mild mitochondrial disorder. Along with the transient nystagmus, my daughter also experienced swallowing difficulties, stridor, and chronic constipation- which are also symptoms of mito disorders. Most of these issues have improved or resolved now that she is 5.5 years old and her motor/cognitive/adaptive skills are all well within the normal range. But, the time I spent researching Mitochondrial Disorders left me wondering if there is not some sort of inherited mild mito disorder that impacts us both. Doctors seem disinterested in pursuing the issue because the symptoms are not severe enough in their eyes to warrant further investigation.

Re: Lactic Acid - Twitching

PostPosted: August 26th, 2014, 6:45 am
by Pascal35
I believe we all should try and check the levels of our lactid acid.
We should also ask our neuros about it and make a small survey in here.
I'm sure we might end up finding something really interesting.
I have been to 25 doctors and only the one yesterday told me about it.

Re: Lactic Acid - Twitching

PostPosted: August 26th, 2014, 10:34 am
by misterjuanperalta
What was the remedy to reduce your levels? I read NaHCO3 or Sodium Bicarbonate would reduce said levels. Any info?

Re: Lactic Acid - Twitching

PostPosted: August 28th, 2014, 5:07 pm
by Pascal35
Actually i havent discussed about it yet.
From a small research i found out that a good way would be aerobic exercise.
I will try over the next days and see. In the meantime i started to take some supplements: Magnesium, B6, Biotin, A - Lipoid Acid and Glutamine...

Lets see

Re: Lactic Acid - Twitching

PostPosted: September 4th, 2014, 6:30 pm
by misterjuanperalta
My neuro Rx'd bloodwork for lactic acid and magnesium. Let's see.

Re: Lactic Acid - Twitching

PostPosted: September 5th, 2014, 10:49 am
by Pascal35
OK nice. Let us know

Re: Lactic Acid - Twitching

PostPosted: September 10th, 2014, 7:51 am
by misterjuanperalta
Both Lactic Acid and Magnesium were in range, 9 and 2.2 respectively.

Re: Lactic Acid - Twitching

PostPosted: September 10th, 2014, 9:08 am
by Pascal35
So OK - Thats nice as it looks that Lactic Acid is quite high... Maybe explains part of your symptoms.
With regards to magnesium as far i know the serum measurement is not very reliable for the real levels of Magnesium in your body

Re: Lactic Acid - Twitching

PostPosted: September 10th, 2014, 10:42 am
by misterjuanperalta
My Lactic Acid is normal per lab/Dr.