Just stopping bu to say I am 99.9% symtom free!

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Just stopping bu to say I am 99.9% symtom free!

Postby Hot Rod on August 3rd, 2004, 5:05 am

It is 8 months since i got my first twitch today and the last 2 months has been almost symtom free.
I get an occational twitch now and then and some buzzings but nothing that I pay much attention to.
My advise to you is to not pay attention to them, it makes it worse. I was once where you were, so I know it is really tough!
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Postby speg on August 3rd, 2004, 8:37 am

Thanks for the advise. Glad to hear you are feeling better. Did you ever see a doctor or just learned to ignore them?
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Postby Hot Rod on August 3rd, 2004, 7:25 pm

I went to see a doctor, but just my GP, no neuro specialist.

Some other advise:

**Don't ever look up ALS on the internet - YOU DON'T HAVE IT!

**This site is great but just visit it when you feel really bad. If you are visiting this site several times a day you are not ignoring your BFS.

**Have fun, do all things you have dreamed about. Don't sit at home and feel sorry for yourself.
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Postby speg on August 4th, 2004, 11:47 am

I like your attitude!

Do you mind sharing what your GP said and how bad were your twitches and where?

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Postby Hot Rod on August 4th, 2004, 10:44 pm

Full body twitches, and I mean FULL!
Started with an eyelid twitch, then on to the feet and from there to everywhere.
Short list starting from bottom:
Toes, feet, calves and the rest of the legs, @ss, penis, stomach, back, neck, fingers, arms, face, toungue, nose, eylid, ears, and the bottom of my hair. Everywhere I have a muscle! Not all at the same time. Twitching 24/7 and it was worst in the evenings.

I have had an occational twicth but more than like 20 a week after june.

My GP just told me that twitches like mine come and go. Almost everyone have them sometime in life.

I just have to stop smoking now, thats more dangerous for my health then the twitches ever will be.
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Re: Just stopping bu to say I am 99.9% symtom free!

Postby John_JR on August 5th, 2004, 3:34 am

Hot Rod wrote:My advise to you is to not pay attention to them, it makes it worse.


No offense as I know your heart only means well, but in actuality there may be those who here are twitching as a result of stress, disease, infection, side effects, or adverse drug reactions.
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Postby Hot Rod on January 15th, 2005, 2:58 pm

Well, it is back... It came back exactly 365 days after my first twitch. Weird...

It won't kill me so....
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Postby Hot Rod on November 5th, 2007, 1:38 pm

Just to let you know, I am still alive and feeling better than ever!
I got like 10 twitches in one arm today, but then it went away.
I remembered that some years ago I had those BFS twitches all over!
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Postby Jeliota on November 5th, 2007, 2:00 pm

Hot Rod wrote:Just to let you know, I am still alive and feeling better than ever!
I got like 10 twitches in one arm today, but then it went away.
I remembered that some years ago I had those BFS twitches all over!


Thanks so much for coming out here and doing that. It would be nice if there were more long-term twitchers such as yourself who would give annual updates.

See you next year. :D
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Postby bbadillo on November 6th, 2007, 2:17 pm

not to rain on any ones parade, had emgs before but ive been twitching now for 10 whole years, and it never goes away :(
born 12/20/1982
diagnosed 1996
present: still alive.
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