Another als fear with atrophy =( (pics)

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Another als fear with atrophy =( (pics)

Postby Jillibillibobb on May 9th, 2014, 1:32 pm

Hi! Short introduction! I am a 25 year old female (2 kids) and have been experiencing a lot of symptoms since having my son 4 months ago. coincidence?

SO it all started after birth when i was extremely fatigued and feeling odd on the right side of my body. well when i finally started regaining my energy i noticed that my right (dominant) side is skinnier than my left side. mostly in my arms but also my back, breast, butt, and some spots on the leg are skinnier. i know its normal for people to be asymmetrical but i find it odd that its the whole right side of my body pretty much. So then i noticed my right hand movement started to feel a little awkward when i would grip things. coming and going. then i did something i will forever regret! googled my symptoms and als popped up! :shock:

since then my thenar muscle has been getting smaller as a whole and right hand it just skinnier although i dont have any clinical weakness except for a slight weak grip but i can still hold things! and i can definitely open jars and button shirts (with one hand even!)hand gets stiff when writing and my forearm gets fatigued easily (making up for hand weakness?) but how can i have this atrophy in my entire arm with no weakness? i have been strength testing and my right arm is actually stronger, but still skinnier! i also get twitches all over my legs. it looks like a pulsating dent every 5-10 seconds sometimes in my calf. i also have brisk reflexes 3 which the dr thinks is just normal for me. i also have been experiencing some on and off swallowing issues. it feels as if my throat is numb and i cant feel myself swallow but i do (normal?) and my breathing has felt odd lately. almost as if im normally breathing but breathing in too much air. it makes my throat dry.

this has been going on for almost 4 months already and im just anxiously waiting to deteriorate (or not!)my neurologist says def not als, but its so hard to wrap my head around all of this!

i have had brain mri with and without contrast, cervical mri, two emgs on right arm, one on right and left leg and tongue! all completely CLEAN! and numerous amounts of blood work! not a single thing is wrong with me! which scares me even more!

can someone please help me out with any insight on what to do?!? i am seeing a neuromuscular specialist june 16th! (so far away) just for a second opinion mainly to calm my nerves as my neurologist says (not that he thinks anything is actually wrong!)

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Re: Another als fear with atrophy =( (pics)

Postby Yuliasir on May 9th, 2014, 2:16 pm

normal hands, good bulky thenar.
are you hypermobile? I ask becasue of strange position if thumb on the top photos.
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Re: Another als fear with atrophy =( (pics)

Postby leaflea on May 21st, 2014, 6:34 pm

Totally normal pictures. Oh my, you should see mine. Yikes!
Matthew 6:27 Who of you by worrying can add a single hour to his life?
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Re: Another als fear with atrophy =( (pics)

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