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Five. Five!!!!! Five year Anniversary

PostPosted: May 8th, 2014, 10:58 pm
by carrie3972
I don't post normally. :) but I was "runner girl3972" on here, a few years ago. I come on, every anniversary, to let you all see a "survivor". I am five. Five. Five. Years in with symptoms, and still here. :) yes, twitching. Yes, one sided ness. Yes, even a weird looking muscle dent that my neurologist saw and said was "odd". And I'm Ok. It's Ok. :)

Re: Five. Five!!!!! Five years. So pay attention!!

PostPosted: May 9th, 2014, 8:56 am
by bobajojo
Hey Carrie,

I was JUST reading one of your old posts. I just completed the Boston Marathon and for the last 14 weeks, BOTH my biceps have been going nuts on me. I read one of your old posts that said your biceps twitched after running as well. Crazy thing we all share! Thanks for posting. Always good to hear from the old timers.

-Matt

Re: Five. Five!!!!! Five year Anniversary

PostPosted: June 6th, 2014, 11:00 pm
by carrie3972
Always been basically right sided afflicted in this. I'm left handed, if that matters. But to this day, five years in, I suffer one sided, mostly.

Re: Five. Five!!!!! Five year Anniversary

PostPosted: June 17th, 2014, 2:58 pm
by johnnythejet
Carrie-
Thanks for stopping by and letting everyone know how you are doing. These posts mean the world to newbies.