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Pain.

PostPosted: March 22nd, 2014, 3:36 pm
by Arkansan
How many of you have pain with BFS? I have all over body pain, it is a deep ache that almost feels as if the bone is hurting or perhaps deep in the muscles. It tends to flare up when I am sick. Anyone else have this? Found any relief for it?

Re: Pain.

PostPosted: March 22nd, 2014, 4:14 pm
by veryworried123
Did you check your cpk?

Re: Pain.

PostPosted: March 22nd, 2014, 6:42 pm
by Watereddown
I've had this before. For me it was in my thighs. It first appeared a couple months before my BFS started

Re: Pain.

PostPosted: March 23rd, 2014, 3:47 pm
by keomagnes
Hey Arkansan! I'm sorry to hear you're having so much pain. When did it start?! Do you have it 24/7?
Have you already thought about acupuncture? It might help you with the pain!

Hope you get better soon!

Re: Pain.

PostPosted: March 23rd, 2014, 8:00 pm
by ShawnW
Yep, I have had pain...legs, hands feet. Quite a bit better now.

Re: Pain.

PostPosted: March 23rd, 2014, 8:15 pm
by emmie.s
Yes, I do have mild to moderate muscle and joint pain. sometimes it shoots and sometimes its constant. My CPK and aldolase are normal levels. I also have positive (albeit low titer) ANA, indicating possible autoimmune. However all sorts of pain seem to be very common in the BFS community.

Re: Pain.

PostPosted: March 23rd, 2014, 8:18 pm
by emmie.s
I forgot to mention, as for relief it seems that anti-inflammatory OTC like ibuprofen is perfect, although I try to only use it when really necessary since it will tear up your stomach with long term use. I have a prescription for gabapentin for the electrical type pain, which I thankfully havent have to use in a while, and another for plaquenil from my rheumy for the possible autoimmune pain.

Re: Pain.

PostPosted: April 7th, 2014, 7:48 pm
by nrun90
I have pain quite a bit in my arms, legs, hands and feet. Just seems like another common symptom. I use ibuprofen, usually when I have to go to work. At home and school I just deal with it.