1 year of symptoms, thoughts please?

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1 year of symptoms, thoughts please?

Postby Tb12 on December 22nd, 2013, 12:02 pm

Hey guys,
Hope everyone is well, always such a insightful and supportive forum. Well i have reached my twelve months of troubling symptoms and thought i would give a update as i am sure we know that just because time passes we so not stop worrying completely. quick back track run down

symptoms:
1. high quantity of twitches everywhere in my body, you name it, i have twitched (still current)
2. postural tremors felt and seen as well as tremors if holding weight etc on any limb, body part (still current)
3. myclonic sleep jerks and now some electric shock type jerks whilst awake that move my body and a limb (still current)
4. GERD, heartburn, scalloped tongue, slurring of some words my th's sometimes turn to f's, tongue biting on occasion whilst eating (still current)
5. extreme muscle stiffness throughout whole body, feels difficult to hold my posture most days (still current)
6. extreme muscle pain that is sporadic and all over body periodically like sharp pains or deep pain (still current)
7. tingles and ticklish itchiness that drives my crazy through out my whole body (still current)
8. a few cramps that kill or a feeling of a cramp like deep pain through out body parts (still current)
9. extreme clicking of joints with pain involved(still current)

medical history for these symptoms
1. 8 neuro visits:
2. clinical exams always fine and passed, no clinical weakness seen even tho i feel weak and am tremoring and less stable
2. 5 emgs in the one year, first emg was suggestive of mild chronic denervation, the other 4 were completely normal and clean
3. endocronologist, blood work and hormones all fine
4. mri of the brain was clear
5. spinal tap discovered cranial hypertension was raised.

note: Last neuro visit was 3 months ago and i got another all clear of anything sinister or nasty.

The things really worrying me are finger twitches that move my whole finger, they are very persistent and happen daily and a lot, does anyone have these that frequent?
the tremors are really bad and my whole body shakes especially my mid section which feels weaker and shakes like crazy just trying to sit up in bed unassisted, or my legs if i just hold them out right will shake and tremor violently and visibly anyone here get that? also the cramp like pains that are very painful and pain in general in muscles unexplained and the tightness/stiffness anyone get that? one last thing i have a lot of rib pain, they are sore just to tough, hurt when i cough or sneeze or breath in a lot coupled with extreme shoulder pain....could this be more than BFS? could it be fibromyalgia? i am male tho. Judging by my medical history can i rule out ALS? even tho i have never had my back, tongue or chest, stomach emg'd, only every limb? i am only 28 years old, any advice and support would be greatly appreciated.

I want to take this time to wish everyone a merry xmas!

Trent.
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Re: 1 year of symptoms, thoughts please?

Postby SecretAgentMan on December 22nd, 2013, 1:04 pm

Have you ever seriously investigated the autoimmune roll a gluten intolerance may be playing in the progression and activity of your symptoms? I wish everyone here would thoroughly rule this out either through an antibody checking blood test or a rigorous diet modification for at least a month. I thought the connection was absurd the first time it was suggested to me, as many do here, but if there was a snowballs chance in hell that it could work, I reluctantly decided to try it. I struck paydirt big time. Others here have too. Please consider looking into it. The research and awareness on neurological disorders caused by leaky gut or increased intestinal permeability is becoming more and more prevalent. It is a shame still so many neurologists don't know about it.
If your mind is your own worst enemy, why not make friends with it and turn it into your greatest ally? Mental discipline is achievable and there is help available. Learn what works for you, practice, and change your life for the better.
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Re: 1 year of symptoms, thoughts please?

Postby Tb12 on December 23rd, 2013, 9:39 am

Thanks for the reply,
After reading your post, i got to thinking, before this first started i was in Thailand and got sick in the stomach, was vomiting everywhere, dizzy and in so much pain i got a flight home, whilst this past i had burning in my stomach and throat that last a month or two later then i got the flu 3 times in one week, one bout sent my joints into severe pain then a week later i came down with all these symptoms, i am wondering if the Thailand situation could have caused some interruptions in my stomach.

Love to hear other people comment on my first post about the questions i asked.

thanks for all the support

Trent.
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Re: 1 year of symptoms, thoughts please?

Postby Tb12 on December 27th, 2013, 9:01 pm

anyone out there who could comment?
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Re: 1 year of symptoms, thoughts please?

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