Do foods trigger symptoms for you?

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Re: Do foods trigger symptoms for you?

Postby johnnythejet on July 22nd, 2013, 1:23 pm

SuziQ wrote:
johnnythejet wrote:Caffeine has always had an effect on my hand tremors, but never on twitches. No other food has ever impacted my symptoms. It might be worth adding that of the hundreds of twitchers I've been very familiar with over the years, food triggers aren't anything I recall being mentioned. Im sure there must have been a few cases in there somewhere, but very few if so.


I think caffeine does this to everyone, not just those afflicted with BFS. In fact, if you really watch people (and you may have noticed this, already,) LOTS of folks have hand tremors. I see it ALL the time.

There is no way I will ever give up my coffee. You will have to pry it from my cold, dead, tremoring fingers. :)

(That last bit was me just being cheeky. I don't actually get tremors anymore and haven't for a long time...) But if I DID ever feel them again, I would not be at all worried, nor would I give up my coffee.

Sue, I agree that caffeine affects most of us that way. Believe it or not, I cut out caffeine completely at one point because the tremors were bothering me so much. Then I slowly introduced it back and realized that I was "letting" them bother me. Now I drink coffee nearly every day without a thought. I was caffeine free for almost 2 years, and it wasn't worth it!
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Re: Do foods trigger symptoms for you?

Postby aztwitchy on July 22nd, 2013, 1:41 pm

johnnythejet wrote:Sue, I agree that caffeine affects most of us that way. Believe it or not, I cut out caffeine completely at one point because the tremors were bothering me so much. Then I slowly introduced it back and realized that I was "letting" them bother me. Now I drink coffee nearly every day without a thought. I was caffeine free for almost 2 years, and it wasn't worth it!


interesting article to read...maybe you will rethink your position on caffeine:
http://lifehacker.com/5585217/what-caff ... your-brain

I'm curious why you would continually ingest something you knows causes you symptoms. I mean I'm glad you learned to just ignore the side effects but why continue?

I hope you are not advising people on this forum that are clearly struggling with OCD\anxiety that they can continue drinking caffeine and expect to be fine....caffeine is one of the very first things any competent neuropsychologist will have you cut out in therapy for anxiety.
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Re: Do foods trigger symptoms for you?

Postby johnnythejet on July 22nd, 2013, 1:46 pm

aztwitchy wrote:
johnnythejet wrote:Sue, I agree that caffeine affects most of us that way. Believe it or not, I cut out caffeine completely at one point because the tremors were bothering me so much. Then I slowly introduced it back and realized that I was "letting" them bother me. Now I drink coffee nearly every day without a thought. I was caffeine free for almost 2 years, and it wasn't worth it!


interesting article to read...maybe you will rethink your position on caffeine:
http://lifehacker.com/5585217/what-caff ... your-brain

I'm curious why you would continually ingest something you knows causes you symptoms. I mean I'm glad you learned to just ignore the side effects but why continue?

I hope you are not advising people on this forum that are clearly struggling with OCD\anxiety that they can continue drinking caffeine and expect to be fine....caffeine is one of the very first things any competent neuropsychologist will have you cut out in therapy for anxiety.

I don't have a position on caffeine, really. Remember, I cut it out completely for years and didn't really see much benefit other than a reduction in tremors, only. The extent that tremors bothered me, was much less than painful than how much I missed my coffee! I don't even notice the tremors anymore unless I drink more than 3 cups.
I'm certainly not advising anyone to drink caffeine, nor have I ever done that. I was simply agreeing with Sue as my experience was similar.
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Re: Do foods trigger symptoms for you?

Postby chrissi on July 22nd, 2013, 2:50 pm

Well noone is telling someone to drink caffeine. It is a personal choice which I have in common with Johnny, to drink it although it can give me tremors if I overdo it. Just like other people drink alcohol once in a while, even though it gives them a headache if they overdo it. There are at least as many positive studies about coffee as there are negative ones, and coffee seems to be beneficial for many kinds of things. If someone feels nervous, he or she should not drink coffe because it can make it worse. But I am not at all anxious and same counts for Johnny and Sue. I can drink 2 cups of coffe at 11pm and fall asleep like a baby at 11:30.
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Re: Do foods trigger symptoms for you?

Postby aztwitchy on July 22nd, 2013, 3:24 pm

chrissi wrote:Well noone is telling someone to drink caffeine. It is a personal choice which I have in common with Johnny, to drink it although it can give me tremors if I overdo it. Just like other people drink alcohol once in a while, even though it gives them a headache if they overdo it. There are at least as many positive studies about coffee as there are negative ones, and coffee seems to be beneficial for many kinds of things. If someone feels nervous, he or she should not drink coffe because it can make it worse. But I am not at all anxious and same counts for Johnny and Sue. I can drink 2 cups of coffe at 11pm and fall asleep like a baby at 11:30.


i would be interested in reading positive studies regarding caffeine and anxiety. I know there are some discussing depression but I have not seen any related to anxiety.

Chrissi, I am surprised your opinion on the matter since you seem to be a big proponent of BFS being related or caused by constant fight\flight mode....if you read the article and see what caffeine does , its blocking a crucial physiological mediator that is already built into the body to tell someone when they are going into the red so to speak and slowing them down. If anyone truly feels most people on here are battling an overload of constant anxiety and stress then you are invalidating your position by saying it doesn't matter what you eat or drink, especially in relation to stimulants and super especially caffeine.
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Re: Do foods trigger symptoms for you?

Postby seventhcandle on July 22nd, 2013, 3:46 pm

My food triggers actually started long before BFS. In 2003, I developed ocular migraine and it became very severe after a 3 year remission in 2007. I was getting upwards of 10+ migraines in a week and noticed that fluorescent lighting, perfumes, parmesan cheese, seaweed, MSG, some cheeses, and wines would almost immediately trigger a migraine episode. I have a feeling that even back then my adrenal glands & HPA axis were going haywire and manifesting symptoms in the form of migraines.

Plus it is a known fact that foods CAN and DO trigger migraines, seizures, and other neurological maladies...just look at the literature. Therefore it should come as no surprise to anyone that certain forms and manifestations of BFS CAN and ARE triggered or worsened by foods. I can tell you for a fact that if I were to go out right now and eat a meal at Applebees, I would probably not sleep for 2-3 days in a row, would twitch horribly bad for at least a week, maybe more, and probably develop a slew of new hotspots. My reactions to foods, etc. are THAT bad.

I think everyone's BFS is slightly different in the way it develops and manifests itself but mine is unquestionably linked to foods etc. I've accepted that and modified my lifestyle in much the same way Burger has with some positive results. I wish I could eat whatever I wanted to, but honestly, it could be a lot worse.

I love the "food challenge" idea. I think many people will notice a difference in their symptoms as they let their bodies calm down after letting go of certain products that contain neurological stimulants, up to and possibly including caffeine. It's a great idea!
Been on the BFS journey since 6/26/12...

Twitch way do I go from here?

BFS does get better with time. Almost two years in and able to do almost everything I could do before I had this condition. Still twitching away of course...
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Re: Do foods trigger symptoms for you?

Postby chrissi on July 22nd, 2013, 4:20 pm

I am not talking about caffeine and anxiety, but coffee and cancer , gallstones which are a big issue in our family, alzheimers, parkinsons, heart diseases and cancer .
In women, coffee consumption significantly decreases all-cause mortality, apparently decreasing somewhat linearly to a relative risk of approximately 0.85 for those drinking 3 cups per day compared to those who consume no coffee, but the relative risk then remains almost the same for up to 6 cups per day, according to a large prospective cohort study in 1993

Coffee and dark chocolate were explicitely recommended by my blood coagulation specialist as a natural remedy to help keep my blood OK an unclotted (of course regularly checked) , so maybe the point of time when I have to take marcumar ( against blood clotting) will be later in my life.
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Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
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Re: Do foods trigger symptoms for you?

Postby SecretAgentMan on July 22nd, 2013, 4:41 pm

Here is a pdf copy of the blood test I had done that checked my antibody levels against approximately 100 of the most common foods people eat. There is a sensitivity scale in the bottom left corner of the page. Notice the gluten and wheat sensitivity numbers, almost off the chart. Today I eat these foods with no problem.

https://dl.dropboxusercontent.com/u/105 ... 20Test.pdf
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Re: Do foods trigger symptoms for you?

Postby jpbw on July 22nd, 2013, 6:01 pm

Jet a troll???

your having a laugh mate, he has helped more 'twitchers' than anyone else on this board, with the exception of Chrissi and LeAnne.

Stay tuned for the next episode of the 'bfs pi55ing contest' to see if Burger can pi55 higher than Jet.
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Re: Do foods trigger symptoms for you?

Postby muppetdog on July 23rd, 2013, 12:11 am

[url]There is no way I will ever give up my coffee. You will have to pry it from my cold, dead, tremoring fingers. :)[/url]

Agreed.

Tried the no caffeine thing for months and months and months. It does not make that much difference for me. Maybe a bit more body vibrating tightness; and if you drink enough of it, your brain goes on hyperactive, have to do everything, overdrive. But it's' way to good.

Alcohol - makes my body burn.
Rice and rice products - makes me twitch
Almonds - make my throat and ears itch, and plums, and carrots, and apples, and babies on planes.

Ate a Papa John's pizza with BBQ sauce last week, and it actually made me feel better. I have not idea why. I have been pretty much meat, and veggies for a while now and the pizza was an experiment.

Cupcakes - not too bad, but if you throw in Rice Dream... way more bad.

Half a jar of peanut butter, not good.

Activia Greek yogurt is the twitchalator.

For some reason green tea makes me worse.

Perfumes make me sick.
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Re: Do foods trigger symptoms for you?

Postby SecretAgentMan on July 23rd, 2013, 10:31 am

muppetdog wrote:For some reason green tea makes me worse.

Perfumes make me sick.


Interesting facts:

Green tea has caffiene in it.

Perfumes often have hormones in them.
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Re: Do foods trigger symptoms for you?

Postby chrissi on July 23rd, 2013, 11:58 am

In my bad BFS times I could not stand the smell of perfume, of body lotions , of most flowers , honestly also the smell of people including my husband and kids which was really bad (they do not smell bad, but I could smell the "human" scent on people 10 minutes after they had showered). It made me so sick. One time I almost threw up in the waiting line at the grocery store because the baby in front of me had a full PEE diaper. I also had a phase of olfactory hallucinations where I was smelling all kinds of weird stuff. Often Gas and smoke, but sometimes also nice scents like flowers or similar things.
Neon lights made my twitching and buzzing and tremors go berserk, but had no influence on the pain.Sorry, I know this thread is about food, but I just wanted to throw that in because I saw the perfume-sickness mentioned.
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Re: Do foods trigger symptoms for you?

Postby muppetdog on July 23rd, 2013, 1:51 pm

Green tea has caffiene in it.


Yeah, coffee dose not effect me but green tea does. I knew it had caffeine in it ;)

Perfumes often have hormones in them.


I think its the dihydrogen monoxide in the perfume that bothers me ;)

I also had to get Aquasana Shower filter at one point because the chlorine smell while I was showering or taking a bath drove me up the wall.
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Re: Do foods trigger symptoms for you?

Postby seventhcandle on July 26th, 2013, 11:24 am

muppetdog wrote:
Green tea has caffiene in it.


Yeah, coffee dose not effect me but green tea does. I knew it had caffeine in it ;)

Perfumes often have hormones in them.


I think its the dihydrogen monoxide in the perfume that bothers me ;)

I also had to get Aquasana Shower filter at one point because the chlorine smell while I was showering or taking a bath drove me up the wall.


Green tea contains naturally occuring L-Theanine which is a precursor to GABA as well as several other neurotransmitters including Dopamine and Serotonin. It freely crosses the blood-brain barrier and it SUPPOSED to have anti-anxiety effects but in certain people it can cause a paradoxical reaction which actually INCREASES anxiety.

This happened to me the first time I took an L-Theanine supplement last year thinking it would decrease my anxiety and decrease my twitching, but instead I experienced the complete opposite - a dramatic increase in twitching and night-time jerking. It was horrible.

Lately, my latest food trigger was raw green onions. Twice. Oh well...
Been on the BFS journey since 6/26/12...

Twitch way do I go from here?

BFS does get better with time. Almost two years in and able to do almost everything I could do before I had this condition. Still twitching away of course...
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Re: Do foods trigger symptoms for you?

Postby SecretAgentMan on July 26th, 2013, 11:48 am

seventhcandle wrote:Lately, my latest food trigger was raw green onions. Twice. Oh well...


Thanks for the info seventhcandle, I didn't know that about green tea. Regarding the raw green onions, I'm just curious if you are doing the rotational diet. If so, did this help you to zero in on the onions? Just curious for feedback sake. Thanks again!
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Re: Do foods trigger symptoms for you?

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