*sigh* Parkinson's fear.

General Topics

Moderators: JohnV, Arron, garym

*sigh* Parkinson's fear.

Postby Arkansan on July 19th, 2013, 12:01 pm

I know this one is kinda out there but I spent most of last night outside my mind to the point of tears afraid that I had early Parkinson's disease. I don't know how to link to them but in my other threads I mentioned my tremoring and the ratcheting thing my muscles do when tensed. Over the past year I was so afraid of AlS that Parkinson's never occurred to me.

But last night I was reading a comic book, and as I was holding it I noticed one side of it trembling and when I looked the pinky and ring finger on my left hand were tremoring. Then I did the next logical thing ... I panicked. My original symptoms last year started with some twitching and then the tremoring and ratcheting of my left wrist and arm whilst washing dishes, my left tremors worse and more consistently, it is also stiff sometimes and why I open and close the fingers the motion is not smooth. The funny thing is I went through a spell where it was my right hand. Anyway it seems like doing much of anything with my left causes the muscles near my pinky to fatigue to the point of pain. Also even the weight of a framing comic book caused the tremoring, which is worse in certain postures of the hand.

I also have had tremoring in my lips for a while now, though it varies from day to day. The funny thing is with the tremoring I often don't notice it unless I am holding a book with my left hand.

Well I panicked most of the evening, though my wife and mother managed to talk me down, my mother shows me that her muscles do the whole tension ratcheting thing to and her right hand tremors in a similar fashion to my left. Whilst talking to her about it my symptoms got better oddly enough even the stiffness in my left seemed to.

Oh and on top of all this I am still twitching, having this internal buzzing, and my right knee cap is stiff and the leg feels funky someways to walk on, though no one seems to think my gait looks any different. Oh I also have pins and needles feelings all over and something like an electric sensation. I have also found that when hitting the focus mitts for awhile that my hands, the left at the pinky and ring finger in particular, tremble and tremor like crazy for a bit afterward. Since I have started boxing again I have noticed a lot of muscle pain in my left hands.

So I am just losing it by thinking about Parkinson's? I should also mentioned that I only got 2-3 hours sleep the other night.
Arkansan
Selfless giver of time
Selfless giver of time
 
Posts: 206
Joined: August 29th, 2012, 6:25 pm

Re: *sigh* Parkinson's fear.

Postby SecretAgentMan on July 19th, 2013, 12:11 pm

Rather than losing sleep and worrying perhaps you should try our diet challenge this monday.

http://gluten.lovetoknow.com/Parkinsons ... ntolerance
If your mind is your own worst enemy, why not make friends with it and turn it into your greatest ally? Mental discipline is achievable and there is help available. Learn what works for you, practice, and change your life for the better.
User avatar
SecretAgentMan
Saint
Saint
 
Posts: 1048
Joined: June 30th, 2010, 3:42 pm
Location: Dayton, OH suburbs

Re: *sigh* Parkinson's fear.

Postby johnnythejet on July 19th, 2013, 12:33 pm

Stop it. There's a reason why out of the 1000's of neuro visits we have experienced, Parkinson's is not something specialists ever think could be the culprit. PD doesn't look anything like BFS, so reverse your thought process ASAP. You're letting your health anxiety get the best of you. Every symptom you described has happened to me and many others, and I promise you Parkinson's is out of the question.
User avatar
johnnythejet
Saint
Saint
 
Posts: 1602
Joined: September 15th, 2005, 2:36 pm
Location: Kansas

Re: *sigh* Parkinson's fear.

Postby chrissi on July 19th, 2013, 2:43 pm

I have had every single symptom you describe. If you have ever seen my fingers video and I now tell you that my whole body was tremoring, buzzing and vibrating just as intense, you will understand why some people called me the " tremor queen". The face and lip tremors are embarrassing and even caused me problems with drinking. Not to speak about the ratcheting that made me look like a freak at the gym. And the fact that I was shaking so bad at night, that I woke my hubby up. You might have noticed I am talking in the past form. This is because this has passed and is not parkinsons. My doctors said it is not even close to how PD presents.
"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
User avatar
chrissi
Saint
Saint
 
Posts: 1538
Joined: August 10th, 2011, 2:06 am
Location: Germany

Re: *sigh* Parkinson's fear.

Postby chrissi on July 19th, 2013, 2:43 pm

I have had every single symptom you describe. If you have ever seen my fingers video and I now tell you that my whole body was tremoring, buzzing and vibrating just as intense, you will understand why some people called me the " tremor queen". The face and lip tremors are embarrassing and even caused me problems with drinking. Not to speak about the ratcheting that made me look like a freak at the gym. And the fact that I was shaking so bad at night, that I woke my hubby up. You might have noticed I am talking in the past form. This is because this has passed and is not parkinsons. My doctors said it is not even close to how PD presents.
"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
User avatar
chrissi
Saint
Saint
 
Posts: 1538
Joined: August 10th, 2011, 2:06 am
Location: Germany

Re: *sigh* Parkinson's fear.

Postby Arkansan on July 19th, 2013, 5:01 pm

Thanks for the input guys, I guess I just needed a reality check. Anyone else ever have their tounge feel fatigued when and their jaw feel sorta tight when you eat or talk? I have this somedays, it is more annoying than anything else. I also had another question, the muscle pains I have both dull and sharp, could those be what some call a spasm or cramp? I thought so at first but when I described them to my wife and mother they said that wasn't it as spasms and cramps typically cause some difficulty in movement or a feeling of tightness. Neither of which happens when I have these pains, if fact I can move the affected area freely and without difficulty, it just feels like a deep tissue pain.

Gah... All of this is a lot for someone who has been prone to health anxiety all their life. How do you guys deal with it? My mother says to go see a neurologist to get some peace of mind but I know myself well enough to know I may still be this anxious over it anyway. I also know that I will over examine anything they say.
Arkansan
Selfless giver of time
Selfless giver of time
 
Posts: 206
Joined: August 29th, 2012, 6:25 pm

Re: *sigh* Parkinson's fear.

Postby Arkansan on July 19th, 2013, 6:41 pm

Arkansan
Selfless giver of time
Selfless giver of time
 
Posts: 206
Joined: August 29th, 2012, 6:25 pm

Re: *sigh* Parkinson's fear.

Postby Arkansan on July 20th, 2013, 8:39 pm

So I screwed up and googled tingling and pain along with PD and apparently those can be symptoms too. Does anyone else tingle and sometimes burn in hands and feet. Mine is fairly constant. I also have deep muscle aches and sometimes sharp pains. Can these things be BFS?
Arkansan
Selfless giver of time
Selfless giver of time
 
Posts: 206
Joined: August 29th, 2012, 6:25 pm

Re: *sigh* Parkinson's fear.

Postby johnnythejet on July 21st, 2013, 1:09 am

Arkansan wrote:So I screwed up and googled tingling and pain along with PD and apparently those can be symptoms too. Does anyone else tingle and sometimes burn in hands and feet. Mine is fairly constant. I also have deep muscle aches and sometimes sharp pains. Can these things be BFS?

Please stop googling. And if you still google other diseases, please don't come back here and post "I read xxx disease has xxx as a symptom." Many diseases and conditions share many of the same symptoms, and with all the people reading these posts who have health anxiety, these questions can cause a lot of lost sleep for no reason. Listen to your doctors and listen to people here who tell you that you aren't dealing with Parkinson's. PD and every other REMOTELY similar disease and condition has been researched/discussed thoroughly many times over in the past.
User avatar
johnnythejet
Saint
Saint
 
Posts: 1602
Joined: September 15th, 2005, 2:36 pm
Location: Kansas

Re: *sigh* Parkinson's fear.

Postby Arkansan on July 21st, 2013, 10:22 am

Right, sorry I hadn't though about the post causing others worse anxiety.
Arkansan
Selfless giver of time
Selfless giver of time
 
Posts: 206
Joined: August 29th, 2012, 6:25 pm

Re: *sigh* Parkinson's fear.

Postby chrissi on July 21st, 2013, 11:41 am

Arkansan, for all your questions:you will see them exactly described in my 126 sx of BFS Post
"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
User avatar
chrissi
Saint
Saint
 
Posts: 1538
Joined: August 10th, 2011, 2:06 am
Location: Germany

Re: *sigh* Parkinson's fear.

Postby Arkansan on July 21st, 2013, 7:17 pm

I checked your post and wow are our symptoms much alike. Here is one I have that my mother who does not have BFS has as well, for instance if I extend my arm to my side and move it up and down I can feel the muscles in my shoulder "jerking" is the best way I can put it. My wrists, neck, and legs do this in certain ranges of motion, any one else know what I am talking about or experience this? This one is a major cause of anxiety for me and it would be nice to know that others have this with no scary disease involved.
Arkansan
Selfless giver of time
Selfless giver of time
 
Posts: 206
Joined: August 29th, 2012, 6:25 pm

Re: *sigh* Parkinson's fear.

Postby chrissi on July 22nd, 2013, 2:02 am

This is ratcheting I think. It is when moves are not " fluent" but the muscles jump from one position to the next in little jumping steps. I had this especially on my arms when I made certain movements. It was clearly visible to others. It passed.
"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
User avatar
chrissi
Saint
Saint
 
Posts: 1538
Joined: August 10th, 2011, 2:06 am
Location: Germany

Re: *sigh* Parkinson's fear.

Postby johnnythejet on July 22nd, 2013, 7:48 am

chrissi wrote:This is ratcheting I think. It is when moves are not " fluent" but the muscles jump from one position to the next in little jumping steps. I had this especially on my arms when I made certain movements. It was clearly visible to others. It passed.

Yes, this is something many have dealt with as well, including myself.
User avatar
johnnythejet
Saint
Saint
 
Posts: 1602
Joined: September 15th, 2005, 2:36 pm
Location: Kansas

Re: *sigh* Parkinson's fear.

Postby chrissi on July 22nd, 2013, 8:46 am

That symptom was awkward. Honestly I totally understand that those symptoms scare you. And I.so totally understand that it is hard to realize that those severe things are no serious neurological disorder but "just" BFS. But they are. After my initial freakout I did not care too much about the twitches anymore, but the tremors and ratcheting and the pain were very bothersome to me. But they proved to be benign for me, for many before you, and will be for the ones after you and of course yourself.
"Our anxiety does not come from thinking about the future, but from wanting to control it" Kahlil Gibran
Anxiety is a thin stream of fear trickling through the mind. If encouraged, it cuts a channel into which all other thoughts are drained
User avatar
chrissi
Saint
Saint
 
Posts: 1538
Joined: August 10th, 2011, 2:06 am
Location: Germany

Re: *sigh* Parkinson's fear.

Sponsor

Sponsor
 

Next

Return to General Topics

Who is online

Users browsing this forum: No registered users and 3 guests