by Rtw on January 6th, 2013, 5:05 pm
I'd love to participate - but I am supposed to go back to the neuro in 6 months (due to reflexes, he doesn't really seem all that interested in my twitches...). Would that still qualify as BFS?
Also, getting video anywhere but the lower legs is tough - mine are quite random/unpredictable elsewhere, except when I have a hotspot on occasion. Would have to have my husband run to me with the camera (or wake him up at night) lol. Maybe just above knees/lower thighs would work. Also, can we black out our names on the medical records?
Also, to do meaningful statistics, they need many more participants!!! Otherwise we'll get more case studies (of which these authors have done quite a few, including some that scare all of us a lot).