For those who thought they had ALS...

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For those who thought they had ALS...

Postby brownale on April 20th, 2004, 1:22 pm

Anybody else have a history of other deadly illnesses they were absolutely convinced they had?

I'm 32 years old. From the time I was 21-24, I was 99% sure I had AIDS. I was getting a ton of canker sores, and felt sure that was from HIV/AIDS. Not that I'm in a high risk group for that disease, but I was sure I had it none the less. Absolutely nothing could change my mind, until I stopped worrying about it. I was eventually told it was probably generalized anxiety disorder, and I had a period of 4-5 years with no symptoms.

Then, at about 27 years old, I started having some difficulty breathing and severe chest pains. For 2-3 years, I was 95% sure I had both lung and stomach cancer. I was finally told I had GERD and probably IBS as well. I started eating better, taking antacids and the pain went away for a couple years.

So now, the twitching has begun, and I have myself convinced that THIS time, I'm right and I have ALS.

Anybody else here gone through anything similar?

I can't tell you how much I like this forum. I already feel better mentally knowing that all these people have gone/are going through the same things. Although, the twitching hasn't gone away yet.
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Believe me

Postby KimE on April 20th, 2004, 5:32 pm

I could out do you in this department.
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Joined: April 6th, 2004, 2:04 pm

Me Too!!!

Postby scaredtom on April 20th, 2004, 9:54 pm

I guarantee that you're not the only one who thinks this way. Wanna' know how many stress ekg's I've had? Of course, I've been convinced I've had serious heart disease. How about gall bladder tests, upper and lower GI tests as well as an endoscopy because of my gut cancer. I'm 54 now and have been dealing with these worries for at least half my life!!!! Last summer I had a nuclear stress test. I was 53. He said I had the cardiovascular system of a 23 year old. That's great!!! Now the fascics and BFS. What a pain. But, really, I guess it could be a lot worse! I've also had a 24 hour holter monitor. So most of us can readily identify with you. Such a shame to waste so much time out of our lives with such worry. It's wonderful when I'm in those periods when I don't worry!

Hang in there!
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Postby Helen on April 21st, 2004, 8:19 am

I thought I had MS when I was 21 years old. I had lots of tingling and numbness all over my body.(that went away) When I was 32 I thought I had aids because I kept getting one cold after another and I also had lots of canker sores in my mouth.(i thought my husband was sleeping around and infected me).that went away....When I was 33 I thought I had a brain tumour because I kept hearing a whoosing sound in my ear.The doctor ordered ear testing and a CAT scan. I pleaded for an MRI.Got one and no brain tumour. Now here I am at 39 with twitching and buzzing and tingling sensations,mainly in my feet and legs but can be anywhere at times. I have had symptoms since Dec 03...Too scared to go for tests.Its been 5 months now and Im much calmer this time.I have convinced myself that its BFS not als. In Dec 03 I thought I had als and went into a deep depression until I found this site. I am so lucky and blessed to have found this site and to everyone thanks for being so kind and friendly in here.Please dont are just wasting precious time.worring can also make your symptoms worse. Take care Helen
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Postby kent1915 on April 22nd, 2004, 3:18 pm

New here and glad to have found this site. I had the priviledge to know two strong people and families directly fighting ALS. This made me ubersensitive when, after injuring my back, the fascics started. Neuro diagnosed anxiety due to my overwhelming fears. Still twitch now and again, still terrified every now and then, but much better over all. :wink:
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Postby graberc on June 4th, 2004, 7:25 pm

Hmm. . .

I did think I had AIDS. . .

also a few other. . issues as well I was sure of. . .
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Postby Bradford on June 4th, 2004, 10:34 pm

I can't even watch TV because of the Viagra commercials. When I do,
I'm convinced that I have...well you know what I mean! :D
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Postby uber on June 6th, 2004, 1:51 pm

brownale just reading you brief story its obvious that you have a history of anxiety problems.

With regards to you Aids worries, well it shows you definately didnt have it or you will either be dead or very ill by now.

The breathing difficulties and chest pain could very easily be down to GERD and IBS which would fit in with your GAD diagnosis, as IBS and GERD are very common with GAD.

So now you have the twitching and you think you have ALS?? dunno what to say to you thats gonna make you feel any better, other than twitching isnt an initial symptom of ALS, and if its just twitching you are experiencing and nothing else (i.e real muscle weakness) then id be willing to bet my mortgage that you dont have ALS. In fact the twitching would probably just fit in with your GAD diagnosis even more. Get yourself away from neurological forums and start looking on the mental health ones :)
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Postby speg on June 6th, 2004, 5:36 pm

When I was 35, I was convinced I had MS cause of the numbness, hand tremors, perceived incoordination so to speak (I was dropping things and even fell a few times), stumbling on words, and some jerking-type twitching. I've had a fear of breast cancer for over ten years, at at the height of it, was giving myself self breast exams a dozen times a day -- even in the bathroom at work. Recently, I went through a diabetes scare, colon cancer, and rheumatiod arthritis. Listen to this . . . the day I passed my joint x-rays, I was in the waiting room (totally worked up)reading PEOPLE magazine. There was a story about a 40-year old woman (my age) with ALS . . . I thought at the time, "How rare for a woman and her age . . ." and scanned the article. I remember seeing "twitching." I don't recall where or when or how. I put the magazine down. THE NEXT MORNING MY LEFT LEG STARTED TWITCHING AND HASN'T STOPPED. So . . . the mind is a powerful thing, wouldn't you say?
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