All Twitchers Consider Lyme

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Postby Nole on January 7th, 2004, 5:32 pm

You all should read my post on Asparatame!!! Check it out...
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Postby Nole on January 7th, 2004, 7:02 pm

OOps dnt look at my aspartame post i was fooled into believing an urban legend sent by a friend... sorry.....as for the lymes was just tested and neg.
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Postby Sahti on January 24th, 2004, 5:50 pm

No one of us can sit around say who doesn't have what, we're not MDs...

In my opinion, while the likelihood of Lyme causing the symptoms is low, there are also determining factors that may contribute to the real live possibility that you do have Lyme.
Where do you live? Do you live in a high populated deer area?
What do you do? Do you often subject yourself to the outdoors?
Did you ever get a rash like that mentioned above?
Did you notice symptoms in the year 1996?
Do you get a herx reaction when you're on antibiotics? (herx reaction = symptoms slowly increase to a great intensity)

Those are all contributing factors that *could* point to Lyme. Perfect example, I live in a region of Pennsylvania where the deer season is extended 3 weeks because of the deer overpopulation!

You stated your symptoms, and even though the majority of people with BFS has those same symptoms and only those symptoms... The best thing to do is get checked out by at least two infectious disease centers. Not just one! The specialists there will conduct the most accurate tests and spell everything out for you about where you stand with Lyme - and you'll feel much more comfortable after you're cued in, whether other people like it or not.
"The most important things are the hardest to say, because words diminish them." - Stephen King
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Postby eric on January 28th, 2004, 9:38 pm

uber wrote:lyme is 1 of many many diseases that has twitches as a symptom and its 1 of those conditions which is thrown around way too much on the internet. Lyme disease is a rare viral disease and its very unlikely that you have this. Im pretty sure if you do find a lyme doctor and have the testing for lyme disease done they will come back negative.


uber you are missinformed on everything you talk about and at this point I would say that you dont have any clue as to lyme is about so try to stiefel yourself and let people have hope. lyme is not a virus!!!!!!!!!!!!!!!!!!!!!!!!!!
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Postby eric on January 28th, 2004, 9:43 pm

uber wrote:Sorry again I have to disagree, id still say its very very unlikely you have Lyme disease based on the fact alone that its a rare condition, this is exactly what I say to all the people that come here worrying about ALS. I also have ,any of the symptoms of Lyme and have also been told numerous times from people off the net that I may have Lyme, I mentioned it to my neuro once and you could see he was finding it hard not to laugh. I know Lyme disease is 1 of the many many disease you hear that neuro's overlook but I think there is a very good reason for this.

If you listed of your symptoms I could probably list off 10-20 neurological conditions that could cause them and thats without doing any in-depth research. You say twitching, tingling,buzzing,tremor are lyme?? how about parkinsons, fibro, MS, BFS, Anxiety, CFS, Epilepsy, Bipolar, CJD, Huntingtons, HIV, Lupus, Chorea, countless Spinal Disorders, Pinched Nerves, Countless movement disorders, MG, PN etc etc the list just goes on and on, and if you look into each of the symptoms listed above and many many more you will find many many people suffering from the same symptoms you describe, I know this cause I suffer from the same symptoms myself.


here you are again talking useless garbage, you havent the brain to save your own life!!! neuro do not know squat about lyme and if you want ask any neuro!!!!!!
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Postby eric on January 28th, 2004, 9:46 pm

Dale wrote:Yes, you can say that you tried AND that you wasted precious time which could have been better spent enjoying the gift of life!

Another perfect example of why this should be left to trained health care professionals.

I think this would be a good New Years resolution for some of us.


dont speak about lyme unless you know what it is about!!!thre are people on this chatroom that have reversed there condition and found it was do to [email protected]$%^&!!!!!!
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Postby eric on January 28th, 2004, 9:53 pm

Nole wrote:OOps dnt look at my aspartame post i was fooled into believing an urban legend sent by a friend... sorry.....as for the lymes was just tested and neg.


A negative lyme test wont rule out lyme period. you should know that all people who have a motor neuron disorder from lyme are late stage!!!!!! and reality has it that that bacteria is not in the blood but in the nerves and impossible to find by any blood test!! if you take your doctors test and believe it well then your playing with fire!!!!
lyme is everywhere and you better learn that now!!!
if you do have lyme you better get educated because the next phase of it you wont like!!!! and as for asperatame yes it is a protein and it is found in the brain but as for the things you say there is no proof at all !!! lyme there is proof!!!!
sorry to be so straight forward but you need to stop knocking lyme.
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Postby Jenn311 on January 28th, 2004, 11:39 pm

Maybe one symptom of Lyme's disease could be a tendancy to overuse exclamation points!!!

J/K
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Postby Nole on February 5th, 2004, 11:30 pm

I dont deny that lyme is a real thing. We have it around her in northwest NJ everywhere, but I dont believe I have lymes. I have been tested a numerous amount of times with all tests being negative, have been on antibiotics with no herx affect and am not progressing. I do understand that you can have a negative lymes test, but I think I just have plain old BFS. You dont need to preach to me about lymes, my brother , dog , and plenty of friends have had it. I understand it fully. Some people may have lymes on this site that is makng them twitch, but I have to trust in my doctors, my symptoms, how I feel, and all of the negative lymes tests I have had.
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Postby jcavan4125 on February 13th, 2004, 8:19 pm

OK I've tried to refrain from this whole topic of Lyme Disease as long as I could, but I can't stand it any longer so I have to put my two cents in (and I realize that is probably about what it's worth).
Lyme Disease is real but not as common as some would believe. It is caused by the Borreila burgdorferi which is neither a bacteria nor a virus it is a spirochete like syphillis. It is carried by the deer mouse tick (not just any tick) and it is not in every area of North America, though it is spreading year by year. The tick must be attached for some time (around 24hrs) to transmit the spirochete. If infected the person typically develops a classic rash around the tick bite called erythema chronicum migrans which looks like a bullseye and lasts for about a month. This is easily seen unless the tick bite is in an unusual location. Primary infection occurs between 3 days to 3 weeks later and includes fever, headaches, neck stiffness, muscle aches and bone pain. At this stage the infection can be easily treated with antibiotics. Several weeks after infection, neurological symptoms can occur in about 15% of cases. Most characteristic is meningoencephalitis (which is a very serious neurologic consequence that would be impossible to overlook). At this point serologic tests can be misleading. If there is a high probability based on clinical features it is best to treat with aggressive antibiotic therapy.
The point is that Lyme disease is not that easy to get (you have to have an infected tick attached for an adequate period of time to transmit the spirochete), once infected there are obvious symptoms that are present and if it does progress to neurologic involvement, twitching would be the least of your problems. It certainly isn't the cause of the majority of twitching on this board! If you think you might have Lyme then by all means go see an infectious disease doctor, but testing for it would be pretty useless. If the test is positive you might have Lyme, or you might just have a false positive test; if the test is negative it doesn't mean you don't have Lyme. That's why ID docs (good ones anyway) will only treat cases in which the probability is high (and because you twitch doesn't mean you have a high probability).
OK I feel better now, and by the way, most of this information comes from Mandell's Textbook of Infectious Diseases (which is considered a bible by many ID specialists)!
Joe... "That which does not kill us makes us stronger"! - Nietzsche
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