Really Old Timer (but younger) checking in again!

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Really Old Timer (but younger) checking in again!

Postby seanrblock on August 27th, 2008, 9:23 pm

Hey everyone!

Sorry I have been away for so long. Im sure some of you probibly have never seen me post. This summer has been a blast. After 2 or more years of my left foot twitching every day...every hour...every minute it completely stopped and has been for about the past 2 months. YES! Actually all over I have had these for about 3 years and like many others was convinced I had ALS. But after so many tests and VERY good neuros telling me "Sean your symptoms are bad but we see this all the time" I finally started to get over it about a year ago. So 2 years of worry (total panic more like it) and 1 year of getting back to life.

I still twitch from time to time. I can predict when I will have a virus 2-3 days before it happens. My twitches go from none or a few to all over and BINGO I get sick. As we speak My right thumb is twitching non stop and it does NOT bother me at all (im sick).

This whole thing is a struggle for each and every one of us. You just have to hang in there, trust your doctors and try to focus on your family and your "normal life". I didnt find this site until I was WAY into the complete paranoia. So thanks to everyone that came before me (Basso, Kit etc...) I can now pass on the torch and I am glad to talk to all of you again.

I have been working out almost every day. I built a LARGE privacy fence for my house ALL by myself and didnt miss a beat even though I was twitching sometimes. So hang in there everyone....it will all work out in time!

Sean Block
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Re: Really Old Timer (but younger) checking in again!

Postby justcindy on August 28th, 2008, 12:27 am

Sean: Good to hear from you again. I am glad to hear that your summer has gone well. You posts were always good for me to read back in the winter when I was soooooo panicky. I finally had a neuro appt - no als - and life is going on, twitches and all. Don't you wish we could just fast forward some of the ones just starting!
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Re: Really Old Timer (but younger) checking in again!

Postby Bart1 on August 28th, 2008, 4:42 am

Hi Sean!

So great of you to post something. We pm'ed a lot and you gave me a lot of information, but still like you I guess I still have 1.2 year of fear ahead of me before accepting I'm fine ;-) But I hope I get over this sooner!

Thanks
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Re: Really Old Timer (but younger) checking in again!

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