I visited 4 neuros - they looked at my muscles, checked reflexes and strength. All of them told me that everything is OK and is no reason to doubt. Nobody told me about BFS - I think in Poland BFS is not known very well.
Since I found this website I hope that I have BFS but I still am afraid of ALS (I am sure that you know that feeling).
I have to questions for you.
First is about what really is fasciculation related with ALS? I have two kinds of muscle movement. In calves I feel and see gentle movements - it looks like very small spot of muscle twiches (once or more). In other parts of my body movements are rather like pulsation (strongest but not strong enough to move my limbs). Sometimes in other parts of my body I also feel single gentle twiches.
The doctors I visited told me that fasciculation related with ALS looks like worms under skin and you also feel like something creeping under your skin. They told me that pulsation of muscles is not characteristic for ALS. Tese "worms" apears because the muscle is denervated and fascicles (the muscles are built from fascicles) are "started to live their own life". And it is always conected with weakness.
I wonder if other kinds of fasciculations (not worms) could be the first sign that something wrong is going on nervous system (for example ALS is developing). If yes, maybe this first phase may proceed without weakness???????
And my second question is about EMG (which I had of course

The examination was described by the neuro who did it as "all examined muscle was in norm (I mean there is nothing wrong)". But I found in detailed description that in one muscle (4 were examined) they found two fibrillations - it was described as "a limit of norm" (of course I know that fibrillations means denervation and it is not good). I asked the neuro who did my exam about it and he told me that single (1,2 or even 5) fibrillations in muscle is nothing what I shoul worry about. He told me that may be a reaction of the muscle for a needle. It also can be from technical problems and sometimes single fibrillations apeares in tired muscle. He also told me that if the muscle were denervated there would be much more fibs and fibs would not end after two of them. And if the fibs were from ALS also other parameters in this muscle would be wrong (and everything else - conduction and so on was OK)
Despite of what he told me I was afraid so I visit next two neuros and showed them the EMG result. They told me exactly the same what the doctor who did my exam. They assured me that I have no ALS (for 99,9% - nothing is 100% sure in medicine).
I wonder what do you think about this fibrillations? Is here anybody who also had single fibs in EMG and was told that is nothing to worry about?
I think that if my fibs would be the sign of ALS it would be a bad sign for many of people on this forum - I have no other symptoms (sometimes fatigue, but I'm sure that is not weakness, no speak or swallow problems, and 4 clean neuro examination).
But if the truth is that no weakness and clean neuro examination means NO ALS and isolated fasciculations are ALWAYS bening tha also must be the truth that single fibrillations during EMG could be normal.
What do you think?
Sorry if my post is too long

Marcin