Newbie: here's my story/symptoms

Information about how to manage or reduce the severity of BFS symptoms

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Newbie: here's my story/symptoms

Postby DavidG on May 15th, 2003, 2:21 pm

Hi, this is David.

Last night I got on the Net and was determined to see if I could track something down. My story sounds a lot like many others. I'm a 45 year old male. Started having these twitches & vibrations predominantly after getting over a good cold about a month ago. I've had the big, nightime jerks for a long time now, but the fine twitching sensations are new. Read about ALS and freaked out for about an hour or so until I came across info on fasciculations, which eventually led me to the this BFS forum.

The biggest challenge for me is getting a good night's rest. I get this vibration especially in my back & abdomen area, along with the specific fascis that can occur just about anywhere. I also typically have 0-2 big jerks a night as well (myoclonic jolts?) This morning I woke up with the same generalized vibration/slight trembling sensation in my whole abdomen & back area and then my right calf muscle went into a full blown cramp (but calf cramps are not new) where I had to quickly massage it out - ouch!! Even now as I sit here at the computer I can feel the vibrations and shakey trembing sensations occurring in my upper back, neck & abdomen. Not sure if these are true BFS stmptoms when the shaking occurs but they seem to go hand in hand.

I haven't been to a neurologist, but my reg. physician did some extensive blood work and of course it was all normal. I also saw a heart specialist and he said my ticker was just fine. At this point I don't plan on seeing any more docs but am going to try some of the natural remedy suggestions I found here including the Vit.E/Calcium-Mag-Copper regimen someone mentioned. If that doesn't help I may go the med. route like Zoloft or a few others. Hope I don't have to the med. route - arghhh!


Would appreciate any & all feedback and thank you all, especially Arron.

David
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Postby Jenn311 on May 15th, 2003, 3:26 pm

Wow David

You seem a lot more calm than most newbies. You only freaked for an hour, eh? Lucky you! I have never been to a neuro either, and when I went in for my twitching to my GP several years ago she told me I didn't need to go if I wasn't experiencing weakness or loss of strength.
Best of luck to you! BFS is a pain, but mostly just that.
~Jen
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Postby DavidG on May 15th, 2003, 4:41 pm

Hi Jen:

I think I would still be freaking out :shock: if it weren't for the good fortune of finding this site so quickly. Thanks for the reply.

David
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Postby Floater on May 15th, 2003, 8:49 pm

blood work fine.... no weakness......BFS...myoclonus can be phycological stress in the brain...common in bfs..klonopin works great ...
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Postby reneeintx on May 17th, 2003, 3:41 pm

David-

It's great to see you post here. I'm the one from healthboards that's always trying to find information from others.

You're right Aron seems to be the most knowledgable about BFS. He's helped many calm their fears.

I hope I'm talking to the right David. If you're not, HELLO and welcome just the same.

Renee :)
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