prognosis

Information about how to manage or reduce the severity of BFS symptoms

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prognosis

Postby Lance on April 17th, 2005, 4:18 pm

Dear All

Could anyone tell me the prognosis of those with bfs...? Does it persist until we croak or can it be selflimiting....?

Thanx
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Postby Floater on April 17th, 2005, 7:49 pm

my neuologist said it will probably be with me most off my life
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Postby Johnny on April 17th, 2005, 9:10 pm

Well in that case Floater I wish you 50 years of twitching! :wink:

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Postby garym on April 17th, 2005, 10:40 pm

Lance,

I've been told that most cases will resolve, but there is no real timetable. I don't know how long you have been at this, but after a while, you do get use to the twitches and start paying less attention to them. For me, I don't think it would bother me to much if they stayed around. Now the muscle pain/fatigue that I suffered from so bad for over a year is a different story. That would just be hell to live with long term. Luckily, I've been experiencing some improvement in that area....don't want to say to much and have it come back with a vengence.

Take care,

Gary
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Postby Lance on April 18th, 2005, 4:32 am

Thanks.

I have had the twitching for a year- but lots of quadriceps pain and fatitigue real bad for six months. Like you it will be hell if this persists- I would find that very difficult.

Would appreciate more feedback. Thanks to all again!

Lance :D
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Postby Barb916 on April 20th, 2005, 5:19 pm

Lance,

I have 2 diagnosis' at this point. One neuro say mono-nueuritis multiplex and another says BFS. The one that says BFS said it can take a long time to resolve but the fact that he suggest it can resolve means there's hope! :D

Barb

p.s. the neuro who says I have mono-neuritis multiplex said that the perpherial nervous is a slower healer; taking up to 2 year to heal.
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