cramps in foot

Information about how to manage or reduce the severity of BFS symptoms

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cramps in foot

Postby RLENEGHAN on March 3rd, 2005, 7:25 am

I just posted for the first time yesterday and have been eagerly awaiting replies but since I have only received 3 I thought I would re-post. I started with fasciculations 6 years ago. They eventually went dormant but 3 weeks ago I started having cramps in my feet and the widespread fasciculations began again. The cramping is predominantly in my right foot. Which scares me with it being mostly one-sided. I am hoping there are some other people out there who have experienced the same and can reply. Of course I read on an *** website that cramping is an early sign,especially in the feet and hands. So I have worked myself into a sorry state. I am looking for replies so I can once again feel there is hope that this is BFS. I am scheduled for an EMG on April 7th.
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Postby DeeDee on March 3rd, 2005, 11:04 am

I have had cramp-like pains in my hands and feet. If you read info on ***, it starts out affecting one area and gradually progresses to the rest of the body. It doesn't start out everywhere at once.

Back to the cramps, I have some sort of pain or uncomfortable sensation everyday. I have had 2 EMG's testing 3 extremities in totality. All normal. I have a 3rd scheduled in a few weeks. It will be conducted by an *** specialist.

I think you sound similar to everyone on this board. We all experience strange sensations and have fasics.

P.S. My right foot hurts worse than the left. I am still okay.
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Cramping

Postby Davey on March 3rd, 2005, 2:55 pm

You stated in your email:

I started with fasciculations 6 years ago. They eventually went dormant but 3 weeks ago I started having cramps in my feet and the widespread fasciculations began again.


First, you first had symptoms 6 years ago. You say that you twitching went dormant. How long ago? Did your twitching go dormant, or did the twitches just become so fine that you didn't feel them?

Your cramps and fasciculations began again 3 weeks ago. Have you been under stress lately, experienced an illness, or had surgery recently? All these things can trigger flare ups of BFS.

You state that you have foot cramps in only the right foot, but widespread fasciculations. Generalized fasciculations are not indicative of ALS. The fact that only your right foot is cramping may be indicative of nerve irritation in that foot that is greater than other areas. Are these cramps triggered by particular movements or exercise, or are they spontaneous? There are different triggers for cramping and cramping is common in BFS (that is why there are other terms for benign fasciculation syndrome: benign cramp-fasciculation syndrome, cramp-fasciculation syndrome, peripheral nerve hyperexcitability, etc.).

All indications point to a flare up in your BFS/CFS. I cramp in my right calf, but not in my left cramp. Both of my feet cramp. I occasionally get cramps in other places, but they are relatively rare.

BFS has a tendency to wax and wane over periods of months to years, and flare ups seem to be triggered by periods of stress. Mental or physical stress is no different, since mental stress causes a release of hormones and triggers antibody response.

The best thing that you can do is eat right, get plenty of rest, drink lots of water, and reduce stress (both physical and mental).
Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
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Regarding circumstances of flareup

Postby RLENEGHAN on March 3rd, 2005, 5:43 pm

Regarding Dave's questions: I have been under some more than normal emotional stress this past few months and as of two days ago I am now battling the flu. Regarding my fasciculations being dormant I really don't know if they were totally dormant or if I lost fear of them and didn't notice them anymore. What has really thrown me for a loop are these cramps. I have them rarely in other spots but eveyday I get cramps in my right foot. And it usually starts at the same time in the late afternoon. Does this still sound like BFS. I pray it is. Does it sound normal that when I had benign fasciculations 6 years ago I didn't have these cramps. Please reply. Looking for hope.
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Cramps and fascics

Postby Davey on March 4th, 2005, 6:26 pm

I have had fascics in my calves since 2001, but it wasn't until Fall 2004 that I started to get cramps in my calves. Things come and go, wax and wane.
Cheers,

Dave

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"Do not fear death tomorrow so much that you forget to live today."
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Postby speg on March 14th, 2005, 11:19 am

My left foot cramps but not my right. Also, both feet cramp if I point my toes. I get cramps in my calves as well.

I'm not sure if stuff posted on *** websites is always accurate or explained fully. It is my understanding cramping is a later sign. And not everyone with *** cramps.

AND my neuro told me the pain must be present with weakness.

If you look up foot or calf cramps, you'll find a wealth of information on what causes them other than ***. It's really quite common.
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Postby amy_twitch on March 14th, 2005, 1:40 pm

I think arm and foot cramping is normal and simply part of aging. I am in my early 30s, and I find that when exercising or stretching, I can't point my feet like I used to (when I was younger and took ballet lessons) without getting cramps in my feet every so often.

Also, I find that spending a day thoroughly cleaning my house (doing a lot of work with my hands to clean base boards and shutters), my hands will cramp easily and be sore for a few days after.

Really, I think a lot of our strange sensations are just from age--and not necessarily due to BFS alone.

I'm a pretty big basketball fan (go Sacto Kings!), and now I fully understand why a lot of the players my age are looked upon as 'nearly retired' and very injury prone. It takes a lot of guys who are just 30 a long time to recover from injuries....and well, even the 30 year old guys who aren't injured just don't have the joint flexibilty and mobility to move as fast as the teen phenoms and guys in their early 20s.

Cramps can be part of BFS--but they're also very much a common part of aging--even as young as 30 (for me). Part of life that takes some adjusting to. Somehow I never thought I'd be dealing with this stuff until I got 'older'....and now I've learned that slowly but surely, I AM getting older, so I have to also accept that my body is changing accordingly. :)

No worries-Rleneghan, your patterns of cramps don't sound abnormal at all to me. Also, the fact that you had fasics and no cramps six years ago seems totally in the realm of normal to me too.

Hope this board has helped ease your mind. Stick around a while. This place is great for support!
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