Speech Difficulties caused by BFS?

Information about how to manage or reduce the severity of BFS symptoms

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Speech Difficulties caused by BFS?

Postby jasonh_22 on December 6th, 2004, 1:51 pm

Hi everyone, I wanted to know if this is a normal BFS symptom or something more. First off, let me say I have been twitching for about a year now, and I have gone through all the tests to rule out anything else (MRI, EMG, CT Scans, blood tests, etc.)

Anyway, my concern is this. For the past month I have noticed that at times I have difficulty speaking. I know what I want to say, but it just doesn't come out clearly. I have never in my life had this problem, because I have given countless speeches before, and public speaking is my forte.

Are my speech difficulties related to BFS? Sometimes I'm fine, other times I foul up and cannot get my words to come out clearly. Can anyone relate?
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Postby garym on December 6th, 2004, 2:24 pm

jason,

I think that slurring is normal for everyone a little, depending on the circumstances (Like when you are tired). I also know for a fact that I would slur a little long before BFS was ever a concern (public speaking is not my forte). I would, however, follow up with your neuro just to be on the safe side. But I'm sure it is either just you being hyper-vigilant or just nothing to worry about.

Get it checked out and let us know how it goes. BTW, how are the rest of your sxs after a year? Any improvement?

Take care,

Gary
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Postby amy_twitch on December 6th, 2004, 4:42 pm

Hi Jason,
Remember too, that this can be an extremely common symptom of anxiety. When I've had my worst bouts of anxiety (looking back), I definitely had many times where I couldn't get words out correctly...almost like I'd feel completely lost or stuck while trying to communicate. This, in turn, only caused more anxiety because it's a little freaky to feel like you can't speak correctly. I agree with Gary--tiredness can come into play as well.

Unfortunately, this is also one of those quirky things where the more you focus on it, the worse it will seem....and I emphasize the word 'seem'. Do your best not to focus on it--not always easy, I know--and then see how you are doing in a few weeks. I bet it will pass. It might come back many times over, but the good news is that it DOES pass.

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nerve hyperexcitability and bulbar symptoms

Postby Davey on December 6th, 2004, 6:26 pm

You may be experiencing bulbar symptoms of BFS nerve hyperexcitability. Some patients experience this, including myself. There may also be mild cognitive impairment, like word mix-ups, or that "in a fog" feeling. This will be more common for people with twitching in their trunk or tongue than patients with symptoms confined to their extremities.
Cheers,

Dave

Proud sufferer of Cramp-Fasciculation Syndrome since June 2001.

"Do not fear death tomorrow so much that you forget to live today."
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Postby LadyChester on December 6th, 2004, 7:19 pm

I also have difficulties from time to time with getting out the right words. I teach at a college, so sometimes this can be a major problem for me. I think in my case it is part of what others call a "mental fog." I haven't felt quite as sharp since I've been having trouble with PNH.
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