Medication for buzzing/vibrating sensations?

Information about how to manage or reduce the severity of BFS symptoms

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Medication for buzzing/vibrating sensations?

Postby Buzzygirl on October 30th, 2004, 10:03 pm

Hi All,
I really want to know if anyone has had good relief from the buzzing and vibrating sensations that come along with BFS for some of us, and what medication or therapy worked? I've been thinking of trying accupuncture. I am starting on Neurontin, and already take Klonopin. Seems like the Klonopin isn't very effective for these annoying symptoms.
Thanks!
Karen

P.S. Also suffer from the trembling sensation when laying down to go to sleep, and again when I wake up.
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Postby Barb916 on October 30th, 2004, 10:10 pm

Hi Karen.

I have not had any relief either from my buzzing, vibrating, and twitching. My GP or my neuro have not perscribed any meds as of yet (except Lorazapem occasionaly for anxiety....not sure it really helps though!) I just wanted to let you know that I have that same tremor type feeling when I wake in the morning. I don't feel any other time...just when I wake up in the am or if I wake up during the night for a bit I feel it then too.

Your not alone!

Barb
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check lyme

Postby eric on October 31st, 2004, 8:28 pm

check for lyme? i had the trembling in back and i took antibiotics and it seemed to work. i guess the undetectable lyme was sitting in the roots of the nerves of the back. it produced the wierdest sensations.
eric
ps it was really getting bad for awhile there.
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What antibiotics?

Postby carolmerrill on November 1st, 2004, 7:28 pm

Eric

Do you recall what antibiotics that you took to help you? I am seeing a neurologist on Friday and after 5 months of no relief, I am trying to arm myself with as much info as possible before I head in. Also thinking about seeing a Lyme specialist as another resort.

Buzzygirl

Have corresponded with another who said Neurontin worked well for him and his tremors. Keep us posted on how it goes.

Caroline
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Postby garym on November 1st, 2004, 9:41 pm

Caroline,

Good luck with the neuro, I hope he/she can help you. One word of caution, avoid any antibiotic in the quinolone class (cipro, levaquin, tequin, floxin, amicrobin and others). I just read a medwatch study today that showed that these ab's can exacerbate underlying neurologic issues that you may have, and they can actually cause BFS type sxs in healthy people. So please proceed with caution.

On a different note, I think that the neuro is not a good option if you want to pursue the lyme possibility. It has been my experience that they quickly "rule out" without even testing for it. Now i don't think i have lyme, but I was concerned about it at times in the past year and a half and have asked every neuro I saw (three), "do you think this could be caused by lyme?" Everyone of them said no before i could complete the sentence. So if you are really concerned about lyme and live in an area that has it, find an infectious disease dr., and go from there.

Good luck,

Gary
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Postby traveler27 on November 4th, 2004, 1:31 pm

I was given Tegretol, which is supposed to calm the nerve endings. I was thinking that it wasn't working at all, until I decided to slowly stop, then I felt that the vibrations were much worse. I also have a problem at night, where apparently it's very active, not allowing me to go into deep sleep and causing me to be fatigued during the day. I take a low dose of Klonopin at night. I'm also looking for answers and getting none.
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thanks

Postby carolmerrill on November 4th, 2004, 10:09 pm

Garym--I had read here about the antiobiotic to be cautious of, but thanks for reminding me. Funny you should mention about the lyme. I have also been researching on the lymenet website and have actually inquired about a lyme specialist about 4 hours from where I live. I am trying to exhaust all possible resources here in town (and that insurance covers) before I start venturing out. I supposedly had lyme tested when I had a lumbar puncture, but I received all of my records from the neurologist that I had been seeing, and I can't find the test results in there. There is also paperwork that specifies that some of the labwork orders were cancelled because of duplication, so I am wondering if I really have been tested for lyme.

Caroline
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Postby traveler27 on November 5th, 2004, 11:24 pm

Caroline, any news from your appt?
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Neuro apptment

Postby carolmerrill on November 8th, 2004, 4:16 pm

Yeah. I liked the guy a lot, and I felt like he listened to me. But it was only the first meeting. We'll see what happens if I continue to have to go back because what we're doing isn't working. At this point, he says (which is what I kind of suspected) that the virus that I had in February combined with some elevated thyroid levels sent my immune system on a tear. My nerves, which should quiet down as soon as my muscle stops, are irritated and continue to be excited, thus causing my tremors that no one can see, I can just feel. He put me on 2mg of Gabitril (similar to Neurontin) 2x day to try to get my system back in balance. He said it should take 1-2 weeks before I notice any improvement. I am not holding my breath--I will believe it when I see it.
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Postby traveler27 on November 13th, 2004, 12:29 am

This is what the neurologist explained to me, also. That there was an "irritated nerve" somewhere in my body. I don't know, it's been 16 mos. now.
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