Tegretol (Carbamazepine)

[crotwich]

Has anyone had a long term relief from fasciculations with Tegretol? If so, on what dosage? What about the side effects? Thanks in advance.

[TwitchyDoc]

I have, usually 400-600mg daily was enough. No side effects for me.

[crotwich]

Thanks Docen, that's good to hear. Anybody else?

[Ghayes420]

I have not gone this route as of yet, but many report relief. Of all the ALS specialists I have seen, they all agree that there is not any one drug that will stop the fasciculations, but there are several that can reduce symptoms. Here are the specific ones that were recommended from various specialists:
-Tegretol
-Trileptal (some say better than Tegretol)
-Nortryptiline
-low dose Librium (this was the latest offering, "new studies show effective...")


PS- Docen, I sent you a PM, did you disable?

[TwitchyDoc]

Greg, last PM from you came 5th March. I am off any medications and things are not really good - very frequent twitching in both arms, hands and trunk. In addition, I feel as if I aspirate but modified barium swallow was within normal limits (did show mild delay in laryngeal closure) - I cannot medically explain why I feel hoarse and get this sore throat feelin after eatin or drinking and not aspirate.

[garym]