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NEW SYMPTOM: FINGER COLD

PostPosted: January 25th, 2015, 9:43 pm
by InvisibleTwitches
Hey All,

Long time no talk -- I've been doing better and better.....there go days, heck even weeks, without me freaking out. There go days and weeks with me thinking my BFS is just and only that......BFS!!

I still come here however when new symptoms present, and I have a new one that is freaking me out a little. The past two or three weeks, my RIGHT INDEX finger will just get extremely cold......often out of the blue. More recently it has been happening to other fingers as well.

Is this simply BFS? Should I be worried? Do others get this? No way this is something scary......correct?

Anyways, hope all is well guys!!

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 26th, 2015, 12:39 am
by Yuliasir
Hi Ryan,
this is either sensory patches, which is common here, or local spasms of finest blood vessels in the limbs, very probably in case you hace insufficient blood supply. what is the temperature in your office?

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 26th, 2015, 7:22 am
by Little Lost
Agree with Yuliasar.

Could be what we call Raynaud's syndrome. Very very common . Can be associated with autoimmunity, though also cold or stress. Here is quote from NHS, see if it fits your symptoms.

Raynauds
Why does it happen?
The condition occurs because your blood vessels go into a temporary spasm which blocks the flow of blood. This causes the affected area to become cold, can change colour to white, then blue and then red as the blood flow returns.
Raynaud’s is usually triggered by cold temperatures or by anxiety or stress.
You may also experience pain, numbness and pins and needles in the affected body parts. Symptoms can last from a few minutes to several hours.
It is not a serious threat to your health but can be annoying to live with because it makes fine movements of the fingers difficult. People with Raynaud’s often go for long periods without any symptoms and sometimes the condition goes away altogether

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 26th, 2015, 12:52 pm
by SecretAgentMan

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 27th, 2015, 12:36 am
by InvisibleTwitches
SecretAgentMan, Little Lost and Yuliasir:

Thank you all for the responses!

Yes, the office gets cold from time to time, and sometimes I've noticed the cold comes minutes after grabbing an Ice Coffee, for example.

It is still kind of scary, but it sounds like it is pretty normal for us BFSers. Raynaud's sounds pretty spot on. Essentially what you three are saying is that this is NOT a precursor to ALS!?!?

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 27th, 2015, 1:05 am
by Yuliasir
if your fingers react on cold stimulus, then it is just a vessels spasm :)))
YES IT IS NOT A PRECURSOR FOR ALS, people live with Raynaud syndrome for as many years as other. Just be careful, do not go to the mountains without proper socks and gloves and you would be OK. Maximum bad result is that you can have your skin peeled out, and this is also extremely painful sometimes.

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 27th, 2015, 3:49 pm
by leaflea
I have had cold hands and feet for about six months now. Can anyone say anything about that? Cold nose too. I would think Raynaud's because I have some of that in my family, BUT I do not get the discoloration. Triggered by cold or sitting still too long. No other symptoms of peripheral neuropathy.

I would think thyroid BUT recent tests come out normal (TSH, free 3 and 4). However, apparently another test needs to be done for Hashimotos. Does anyone know about this and if Hashimotos can be positive with normal TSH?

Thanks to anyone who has any insight!!!

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 27th, 2015, 5:16 pm
by SecretAgentMan
Cold hands and feet is usually related to poor circulation. Check out BFSBurger's recent post on inflammation. The doc he referenced was specifically talking about inflammation of the arteries as he used to be a heart surgeon. Inflammation was the culprit in my BFS as well.

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 27th, 2015, 6:52 pm
by leaflea
Thanks SAM. Maybe? but don't understand how that would work with a vascular specialist pronouncing my veins "perfect" after a doppler. BTW Gluten free now for almost two weeks and twitching down by about 50% and cramping down by maybe 75%. Coincidence? I don't know but worth a commitment to pursue for at least a few months. Thanks for all your help here.

Re: NEW SYMPTOM: FINGER COLD

PostPosted: January 27th, 2015, 7:27 pm
by SecretAgentMan
leaflea wrote:Thanks SAM. Maybe? but don't understand how that would work with a vascular specialist pronouncing my veins "perfect" after a doppler. BTW Gluten free now for almost two weeks and twitching down by about 50% and cramping down by maybe 75%. Coincidence? I don't know but worth a commitment to pursue for at least a few months. Thanks for all your help here.


When doctors do a test they take a snapshot at a specific point in time and evaluate how you are doing then. For example, if you get blood work done, they draw blood and use that sample to check for this deficiency or that whatever. Your blood sample will reflect the state of your body at the time it was drawn. I remember I had a glucose check at work when they were doing diabetes screening and I came back with really high levels. I had just eaten a fruit cup with my lunch so my sugar levels were obviously going to be high. They wanted me to get checked again and it came back normal the next time. 2 snapshots in time. See?

So when you get a doppler perhaps your veins were perfect. Perhaps you had not eaten a trigger food that was causing inflammation. Perhaps your stress levels were down. Inflammation can trigger for all kinds of reasons. The human body is a constantly fluctuating ecosystem. Medical tests can be very limited in what they tell you though because of this reason. I am not saying this to make anyone panic. It is a good thing. It means that when you do the right things you can almost instantaneously start influencing your body in a healing direction. So what sort of things take us into a healing direction? Anti-inflammatory diets, exercise, stress management and relaxation techniques are great starters.

I am very pleased to hear that you are having success with the gluten free diet. This does not surprise me as I experienced incredible relief from the same change. I had a few other trigger foods, and you may too. Everyone is different so just listen to your body. Chances are that the more processed the food, the more likely you are sensitive to it. I'd recommend you do your homework into Leaky Gut Syndrome as that ended up being one of the key culprits behind my BFS symptoms and it is reversible if you do the right things.