Hi all, been twitching sporadically for about a year. I have had 2 neurologists give me thorough clinical exams which they found absolutely no dysfunction whatsoever and ruled out ***. Just had an EMG yesterday (for the first time), and the neurologist told me he saw nothing at all indicative of *** or any other issue. So I think I am squarely in the BFS diagnosis range at this point.
Here are the most annoying things for me:
1) The twitches - they aren't too bad after a year. Certainly not as bad as some in the forum. Mostly on and off in various body parts. The worst ones for me are the side of my face near my lip corners, although these don't happen too often. Low dose daily clonazepam has helped, with both anxiety and twitches, although the drowsiness is sometimes tough to deal with.
2) Muscle trembling and fatigue - Definitely feel more muscle fatigue and stiffness in my larger muscle groups like quads and shoulders. This is exacerbated by exercise. Nothing I can't push through, but my muscles definitely fatigue more easily than 1-2 years ago. Massage has helped, but I have a massage every 2 weeks and exercise 4 times or so a week.
3) Muscle shakiness - When I do resistance training, my muscles shake more than they used to. I can still move around a good amount of weight and havent lost any strength, but definitely more intense shaking of muscle groups than prior to BFS. This is really annoying, but not unbearable.
Anyone have the same sorts of things? Any tips/tricks to deal with the shakiness?