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AboutBFS.com • View topic - I'm breaking down

I'm breaking down

Information about how to manage or reduce the severity of BFS symptoms

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I'm breaking down

Postby misterjuanperalta on September 27th, 2014, 2:27 am

I stretch my back and it twitches. My tongue has a persistent twitch at the front left side. I speak and it sounds breathed. I am on Flonase for postnasal drip per my ENT. The twitching even affects my chest and neck area. The list keeps getting complicated. See my symptoms update below. To make matters worse, I'm forced to wait 7 months to see an expert. I don't want to live this way anymore.

Updated symptoms list: viewtopic.php?f=5&t=20814&p=156544#p156544

Please advise.
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Re: I'm breaking down

Postby Yuliasir on September 27th, 2014, 3:58 am

well, if you do not want to live this way anymore, you still may choose another one way of life. For me it looks like the only help we can provide is to support your possible decision to consider ALS fears as the main problem, not the twitching. Working in that way would definitely make you feel better and in 7 months you may not need an expert visit at all.

I am not very much familiar with american healthcare system, but for me it looks like being put in incredible 7 month waiting list means that your case is definitely not urgent (otherwise waiting list would be much shorter)

your symptom list really points to metabolic disorder (possibly diabetes), maybe B group vitamines deficiency (paersthesias, muscular pains), GERD (postnasal drip, throat tightness) etc. This is typical for BFS in general.
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Re: I'm breaking down

Postby terry in sf on September 29th, 2014, 8:20 pm

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Re: I'm breaking down

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