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PostPosted: August 28th, 2014, 9:50 am
by leaflea
I wonder if we should all take a break and come back on October first and update how we are feeling after not reading or contributing to the boards. I support your seeing a psychologist (CBT) and a psychiatrist. I started in January and the most helpful thing he has done (he has had many patients with bfs (and suspect he may have had it himself because he is soooo familiar with everything) is to keep me accountable to not run to my doctor for anything without running it by him first. He also prescribed staying off the internet totally for this thing, and I have only been partially compliant (going only to this board and the FB page which are also to be off limits - no googling). He also prescribed a daily "worry period" where I jot a note of all my concerns and use 20-30 minutes per day to fully focus on the problems and engage in some problem solving. The constant fears and doubts running around the back of my mind are of no purpose and detract from living in the moment. I also have not been compliant with that. I vow to start over again today. If anyone is in agreement, I will see you on October first. In the meantime, the biggest leap of improvement came after reading "A New Earth" by Eckart Tolle. I challenge everyone to read is a bit of an odd book, but if you can get into it, it is helpful. It is about acceptance and surrender, to stop fighting and stop the quest for answers. See you all on October 1, 2014. My therapist points out ALS is not a disease with great benefit to "catch early" like other diseases we might fear, so there is nothing to lose. Checking these sites only keeps this fresh on our minds and encourages a focus on it. Checking in is a constant reminder and we have enough of that with our symptoms. Instead, jot down the concerns and focus fully on them once per day. Peace Out.


PostPosted: September 4th, 2014, 7:52 pm
by Neville86
I'm with you leaflea! I start therapy on Tuesday!

Anyway, I'll see you all October 1st as well. Bye for now!


PostPosted: September 5th, 2014, 2:07 am
by J4son
I think that taking a break from all internet sites related to twitching and ALS (including this one) might be a crucial step toward recovering. This site is great for helping newbies to acquire the basis of what BFS is. To reassure newbies, to provide information, help and support. But after a few months - 8 or 10 months - checking in here turns into what is called in psychology a safety behavior and safety behaviors are extremely counterproductive in recovering from any anxiety related disorder. (I am not talking here about veterans trying to help others.)

Taking a break (1 or 2 months or more) should be a step that every person who’s still struggling with anxiety after 8 or 10 months, should seriously consider.