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Crampy feelings

PostPosted: June 11th, 2014, 4:19 am
by TwitchyDoc
For the last few days (7 year anniversary, btw) I started getting strange pains that do feel like cramps but do not cause any muscle contraction or hardening as far as I am aware. Typically the hypothenar eminence (belwo the pinky finger), biceps, abdomen..its strange kind of pain. I am a bit worried as an onset of cramps after 7 years would not be good but still hope these are not cramps.

Additionaly, does anyone here noticed trouble swallowing when you think about that? Once it happened to me I could not swallow for a few seconds and since then, I have been thinking about every swallow I am about to do. I notice that when I think about that, I sometimes do have the feeling like I cannot "initiate the swallow", its like I have to really try. Surely as it is good when I am not thinking about that, I am not that worried..

Re: Crampy feelings

PostPosted: June 11th, 2014, 8:24 am
by bobajojo
I don't understand, why would that not be good? My neurologist is shocked that I don't have cramps with my twitching. He says the vast majority of patients with neural hyperexciteability also have cramping.

Re: Crampy feelings

PostPosted: June 11th, 2014, 8:33 am
by TwitchyDoc
Because usually people present with both conditions or just either (from the beginning). In other words, it would mean that there was a progression and as you know, most of the infamous papers present patient like this. Of course the leg/foot cramps are not counted as "worrisome" cramps, I mean those in hands, arms etc.
But as I said, I do not think these are true cramps because cramps are defined as involuntary contraction - and I do not feel any contraction ;)

Re: Crampy feelings

PostPosted: June 11th, 2014, 8:40 am
by bobajojo
But, I started getting cramps in my calves at 2 years in and I'm fine. I also have days with cramps in my forearms and shoulders. No big deal.

Did those patients also present with 7 years of twitching first?

Re: Crampy feelings

PostPosted: June 11th, 2014, 8:46 am
by TwitchyDoc
Matt, I know..of course not. I mean, there is a reason why literature calls this "cramp-fasciculation" syndrome. For me it is just something new, especially the strange pain in the small hand muscles.

Re: Crampy feelings

PostPosted: June 11th, 2014, 9:07 am
by bobajojo
Don't get me wrong, this sucks. I know it does. My bicep has been twitching continuously for 18 WEEKS straight now. Not even a second break. In fact, both arms, thenar muscles and shoulders have been twitching up a storm lately and my tongue is still going daily. I'm just trying to point out flaws in your logic when you said it wouldn't be good. I agree that it won't be good in a sense that its one more symptom you have to deal with, but its still benign.

Re: Crampy feelings

PostPosted: June 11th, 2014, 12:31 pm
by Red Raider
TwitchyDoc
Hey your advice you gave me along time ago sounds like your going through the same problems. In my right hand I get a cramps feeling and pain feeling in it as well and I did not present with this. I'm going to see a surgeon for it because my EMG NCV said I had mild ulnar neuropathy so maybe that is my problem I hope. But I never had a cramp though. I had trouble swallowing and sure enough my thyroid was enlarged and didn't even know it. My thyroid level were good it just my thyroid kept getting bigger so I had it removed. Just something's you should look into but by you and my ALS specialist if your having pain that is a good sign. It's something else but I get those spots all over like a hotspot of pain it's weird.

Re: Crampy feelings

PostPosted: June 11th, 2014, 7:52 pm
by leaflea
TwitchyDoc, I think it was you who told me in a PM that it would be surprising not to have cramps with this. So, I think you know better but don't have the same insight when it comes to yourself. My neuro asked me about cramps and when I told him I'd had them in the abdomen along with the strong fasics I'd had there, as well as in the feet, it didn't change anything he thought. He didn't even ask me to come back for follow up. ALS Specialist - Director at the University of MN. Praful Kelkar if you want to see his credentials.

Re: Crampy feelings

PostPosted: June 12th, 2014, 7:36 am
by volfan
I have been have problems with the crampy feelings lately as well. And, yes, I know what you mean about the swallowing thing. I hate that. I hate it all. The ONLY thing really, truly good that has come from all this is that I met Matt and I think he is a God send.

Re: Crampy feelings

PostPosted: June 12th, 2014, 10:31 am
by bobajojo
:oops: <--- blushing

Re: Crampy feelings

PostPosted: July 30th, 2014, 10:20 am
by Caro
Hello excuse me twitchydoc are you a doctor or is it just a pseudo ? I had a cramp in my hand 2 month ago is it bad sign ? I am so worried

Re: Crampy feelings

PostPosted: July 30th, 2014, 6:10 pm
by leaflea
Caro - I get hand cramps also on occasion. My mother gets them for years. While disturbing, it is not uncommon with bfs. Use the Search function above and you will see. Twitchydoc feel free to answer...I think it was you who said they are to be expected with bfs.

Re: Crampy feelings

PostPosted: July 31st, 2014, 2:33 am
by TwitchyDoc
Hi Caro
Well, my nickname (a pseudonym) refers to both my name (Docen) and a profession - but I am a neuropathologist, not a clinical neurologist.

Anyway, cramps in the hand might be (and often are) related to activities such as writing, excessive usage of PC etc. Try to change your habbits if there is something that could affect the posture of your hand.

Re: Crampy feelings

PostPosted: August 15th, 2014, 10:43 pm
by Hi123
Twitchydoc you seem to be one of the most knowledgeable person around here.. Not sure why someone like you might be worried after 7 years !!! We all know realistically and statstically its almost impossible to have this after 7 years..