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PostPosted: April 15th, 2013, 8:06 am
by Noturnus
I am now almost 3.5 years with this problem.
No weakness and no atrophy.
There are weeks when I suffer from moderate muscle achings and heavy fasciculacions.
There are other weeks when the symptoms simply vanish. I recentily had a remission that lasted more than a month. I thought I was cured, but, unfortunately the problem came back and I am now on a very bad relapse.
As the time passes, I have less and less fear of having a terrible disease. until now I got no progression and I think a malignant disease would have progressed by now.
But the symptoms (aching and fasciculations) sometimes are very very very debilitating.

Re: Update

PostPosted: April 15th, 2013, 10:03 am
by mwagner
I'm so sorry you're still dealing with pain. But glad you had a short reprieve from all of this. Was anything different during your life when it got better? Just curious.