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Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 12:25 pm
by ag2002
Hey everyone. I have some exciting news to report. Last week I was given the diagnosis of multiple sclerosis. My neuro wants me to get a spinal tap just to confirm. So, I have been studying diets for MS. There are so many diets out there, but the 2 most popular are the Paleo diet (Terry Wahl's diet) http://www.youtube.com/watch?v=KLjgBLwH3Wc and the Swank diet. They differ on the amount and type of fat and grains to cosume. However they both emphasize the importance of vegetables and fruit. If you get a masicating juicer and juice all sorts of vegetables and fruits it will benefit you infinitely more than taking any multivitamin. I have been juicing the last 2 weeks everyday and just yesterday I noticed I hardly had any symptoms. No constant buzzing in my feet and the twitches are not even noticeable. I am also taking Vit. D, fish oil, tumeric w/ pepper (make my own), ginger (make my own) and 5 days ago I just started vitamin B12. I don't know if it is the B12 or the juicing, but something is working. Everyone needs to emphasize vegetables and fruit to obtain all of the different enzymes and nutrients, most of which scientists have not even discovered yet. There are a couple different types of juicers, but the masicating juicer is by far the best. It squeezes out all those nutrients the best. Also try to buy organic if you can, to avoid any pesticides or herbicides. Get juicing people!

1-15-13 Update: Keep reading the thread, I did not have MS! Didn't want to scare any hypochondriacs out there. :D

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 1:14 pm
by bobajojo
ag,
Interesting. I have a juicer and squeeze myself some fruit juice from time to time but nothing consistent. Just curious about your MS diagnosis though, didn't you have a clean MRI of your brain? I wish you the best with whatever is going on with you and hope that the juicing helps! -Matt

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 5:33 pm
by BFSBurger
Go easy (or not at all) on the fruits. There isn't anything in most fruits that you can't get from vegetables. But there is a sh*t ton of sugar, which could cause metabolism problems down the line. Just because its not a chocolate cake doesn't mean its not packed full of the same sugar. Carrots even have a high sugar content. I would avoid juicing fruits altogether. I don't see any purpose in them. I do have blueberries and blackberries and cantaloupe with my breakfast but that is it. If you absolutely need something to offset the taste (which fascinates me because people have no problem downing a shot of vodka), then put lemon in the juice. It lacks all the bad stuff of other fruits.

You are correct on the juicing of organic vegetables. The health benefits are astronomical. I have been juicing now consistently for a few weeks and ... well lets just say I am keeping my mouth shut until more time has passed. Its a ton of work, but there are methods to improve things. If you are diagnosed with MS - I would make it a daily imperative, without exception. Regarding MRI's - they can be clear in the absence of a solidly defined MS "event" (blindness / numbness entire side of body, etc). But you do need an MRI showing very specific MS lesions in proper locations in order for diagnosis. But that's not all you need. You also need two MS defining events in a certain period of time along with those lesions.

But I thoroughly believe you control how far you progress. That is why my daily regimen has changed so much since this started. Im taking steps.

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 5:43 pm
by BFSBurger
Correction / Update: I didnt realize his MRI was less than a month ago. I do believe you need white spots *and* two major MS related events in a period of time in order to have a diagnosis of MS. Without that criteria they wouldn't / couldn't call it MS. If you had a clean MRI (as you reported on December 28th only 5 days ago), and you haven't had any MS events .... how did they diagnose?

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 6:02 pm
by aztwitchy
so I take it juicing is having positive effects BFS? :)

As for the MS thing i think what you are saying is your doctor is suspicious its still a possibility or was he sure of his diagnosis...I also assumed you had to have either an MRI show it or the spinal tap for antibodies before diagnosis.

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 6:16 pm
by BFSBurger
Agreed.

Q: I’ve experienced burning sensations and stiff muscles, and now muscle spasms over the past 18 months. All my test (blood, nerve, muscle and evoked potentials) come back normal except for three small sub-cortial white matter lesions in my frontal lobe. Would a spinal tap be beneficial?

A: Cerebral Spinal Fluid testing is rarely positive if [MS specific] MRI lesions are not seen. The changes in duration, as well as the many locations of your symptoms would result in a relatively large number of brain lesions in many locations, if MS were the culprit.

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 6:45 pm
by aztwitchy
I guess there are chances that he could fall into those very rare scenarios....regardless i would leave diagnosis up to his specialists. Keep us posted though

Re: Juicing and vitamin B12.

PostPosted: January 2nd, 2013, 8:31 pm
by BFSBurger
Ah .... but add to that the change in locations, and duration of symptoms, and you take rare to nill ... !

Re: Juicing and vitamin B12.

PostPosted: January 3rd, 2013, 9:21 am
by ag2002
The doctor I was seeing is a spinal neurosurgeon and a very good one. I went to see him when the other neurologists told me that everything I had was structural. So, I went to see him and he told me that my symptoms were not coming from any structural problem. He stated that I probably had MS based on 2 evoked potentials that he ordered that the other neurologists failed to order. Both my somatosensory evoked potential and visual evoked potential were abnormal. Therefore, he is refering me to a different non surgical neurologist for further care. He stated that the next step would probably be a spinal tap to confirm a diagnosis. Here are all the tests I have had and the results, in order.

1) EMG-showed nothing in my legs, mild bilateral carpal tunnel syndrome

2) MRI of my lumbar spine- 2 bulging discs at L5 and S1

3) MRI of my brain and cervical spine-normal, nothing structural and no lesions

4) somatosensory evoked response- abnormal, my doctor stated the test pinpointed the abnormality to my neck, however it is not structural (meaning no disc or vertebrae problems)

5) visual evoked potential- bilateral optic neuritis (however I have no problems seeing)

Re: Juicing and vitamin B12.

PostPosted: January 3rd, 2013, 9:34 am
by ag2002
I just did a google search about MRI's and from what I can tell the first one's used extensively were in the early 1980's. So, before MRIs they had to diagnose MS somehow. I guess they did it based on signs and symptoms and evoked potentials and spinal taps. This is a quote from Web MD "Also, a normal MRI does not absolutely rule out a diagnosis of MS. About 5% of patients who are confirmed to have MS on the basis of other criteria, do not have lesions in the brain on MRI. These people may have lesions in the spinal cord or may have lesions that cannot be detected by MRI." http://www.webmd.com/multiple-sclerosis ... diagnosing MS or not, we need to take care of our bodies and juicing is about the best way nutritionally to do that. It is far superior than getting our vitamins, enzymes, nutrients, etc. from a bottle. I just hope everyone will give it a try and see how much better you feel. The things I have juiced include: flax seed, swiss chard, kale, papya, watermelon, grapes, jicima, carrots, celery, pineapples, apples, pears, snow peas, mango, turnips, cabbage, cauliflower, radishes and spinache. I usually reserve some other frozen fruits and mixed greens for smoothies : strawberries, blueberries, peaches, cherries, pineapple, cranberries, bean sprouts and all types of greens.

Re: Juicing and vitamin B12.

PostPosted: January 3rd, 2013, 4:08 pm
by aztwitchy
ag although I hate to hear this is potentially MS im happy you have a diagnosis to go forward with. Still possibly "just" BFS but regardless you guys got me convinced to try juicing. Seems like one of those healhty things to do to treat any issue and help the body heal itself. My hope is we are all healed or at a minimum become equipped to live healthy lives.

Re: Juicing and vitamin B12.

PostPosted: January 14th, 2013, 9:39 am
by ag2002
Great news!!! No MS!!!!!!!!!!!!!!! The appointment with the non surgical neurologist went extremely well. He stated that I had to have an abnormal MRI before a diagnosis of MS. He pretty much blew off the evoked response tests and stated they did not carry as much weight as compared to an MRI. I didn't have a spinal tap done. The surgical neurologist I was seeing does not deal with MS, but instead spinal structures. So, I am taking the new neurologists diagnosis as my final diagnosis. He diagnosed me with neuromyotonia (which includes BFS). He stated that he doesn't know the cause but that the symptoms are treatable. He stated he believes it is an organic syndrome and doesn't believe it stems from anxiety. He has used klonopin on another patient of his with the same diagnosis with very good results. So, he is increasing my klonopin to 1 mg a day. I had previously been given 0.5mg a day from my psychiatrist (by the way I didn't have a psychiatrist until this all started.) I voiced my concerns with him about the dependency and tolerance issues I have heard with klonopin and he stated he didn't think that would be a problem. My psychiatrist didn't think tolerance would be a problem either. I am going to see the new neurologist again in a month and will bring up other medication I might like to consider that will work without the dependency issues. Lamictal, tegretol, etc. For now I am going to continue to live a health lifestyle and take my medications as prescribed. The health lifestyle I chose is to consume a mainly paleo diet (vegetables, fruits, some meats, lots of coconut oil, and a few grains (minus gluten), no dairy, and lots of water) I am going to have to stop coming to the board and obsessing over my symptoms. This board has been great and a lifesaver this past year when I thought I was the only person in the world with these weird symptoms. Take care everyone and I hope that you all find healing, whether through medicine, diet, or my personal favorite Jesus. "When evening came, people brought to Jesus many who had demons in them. Jesus drove out the evil spirits with a word and healed all who were sick. He did this to make come true what the prophet Isaiah had said," He himself took our sickness and carried away our diseases." Matthew 8:16-17. I will be praying for all of you, and I mean that.

In Christ,
Jerad

Re: Juicing and vitamin B12.

PostPosted: January 14th, 2013, 11:29 am
by BFSBurger
Good to hear Jared. Would you be able to edit your first post so those who never make it past the first sentence don't close their laptops and go cry themselves to sleep? :lol:

Regarding the meds - try to keep it to a minimum unless you absolutely feel like you are out of control. You know the feeling. I had it last week, where stuff was set in motion and I couldn't stop it. First time I've ever experienced that before. Whatever this is can affect our ability to remain calm. I literally have *never* had an issue with that in the past. I know Dead Sea Salt baths sounds a little stupid, but there is something in those minerals that almost acts like a sedative for me. I wont even say almost. I'll say definitely. My buddy who is into natural medicine says its the Bromide which has been used as a sedative. It truly calms you to the core, and 3-4 nights a week have helped reduce my stress levels over the last 3 months. Exercise is the other huge factor here. You must begin a very careful, easy, low impact, full body movement regimen once every few days. Without this I truly believe I would be off the deep end by this stage.

Re: Juicing and vitamin B12.

PostPosted: January 14th, 2013, 11:31 am
by aztwitchy
ag there is some additional bloodwork they can do for neuromyotonia, just to be aware. either way it sounds like your doctors are getting down to a diagnosis for you so for that I hope it brings peace.

Re: Juicing and vitamin B12.

PostPosted: January 19th, 2013, 5:48 pm
by Hila
I'm very glad to hear that it's not MS. After reading that you had buzzing in your feet, I almost got a heart attack cause that was my first symptom and one of the worst. Does this neuromyotonia condition also include tingling and numbness?