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Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 8:50 am
by Yuliasir
Hi Emil,
migrating pains also could happen not only in BFS but overall in anxious people, i had them in the legs when i was younger and was very tired and nervous because of working at brand new plant ;)))

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 9:04 am
by Floydian
Hi Emil, try to look at things in perspective as not every symptom is necessary related to bfs.
Nonetheless it is very common that a variety of (new) symptoms can show up each day, week or month.

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 9:51 am
by Scandinavian girl
emil, This type of pain in arms and fingers i can definately recognize. just see my earlier posts. i think it's nerve pain/neuropatic pain. i have it in legs also. interessant that you also see this "floaters /dots "

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 1:16 pm
by SwedenEmil
Yulia: How did this leg pain feel when you were younger?, cuz l do have pain along my bone in my arm right now. Was it the same 4 u?`

Floydian. Yes lm trying to think more positive, but l cant focus on other things when l do have symtoms l never had experienced before. :(

Scaandinaviangirl: What kind of dots and visble thing do you also see? cuz l have alot of them years ago, sometimes my whole sight at the left eye could black out during a few minutes.

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 2:57 pm
by Yuliasir
it was a stabbing localized pain, ,just that. Like I have a big needle inserted in my leg.

pain coming along the bone is usually associated with nerve compression. I had such pains about a year ago in the left leg - they were, they had increased if i strined the arm 9(dragging a suitcase or even taking a 10 pounds pack from the local food market) - it was a peak of my BFS - I do not have them now

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 4:16 pm
by SwedenEmil
Oh thanx alot for the comforting post, did your doctor ever explain why they appeared? whas it due to the BFS?

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 12th, 2012, 4:49 pm
by twitchinjohnny
Hello again, Emil....

From the way you describe your pains, they very well could be a symptom of BFS. I've had many inexplicable, roaming and transient pains in every muscle of my body for years now. This type of pain is pretty common in BFS and in things like Fibromyalgia. Both of these conditions are a real drag, but not life-threatening. Pain is not a symptom of ALS or other motor neuron disease. These nasty diseases affect the motor neuron system, not the sensory nerve system. People who are in the latter stages of ALS may have pain due to a secondary condition brought on by disease.... like pain from compressions sores. Pain in not a primary symptom of ALS, and the kind of pain you describe is definitely not characteristic of ALS.

Sounds to me like you have BFS like the rest of us. Keep you chin-up, my friend! You'll be o.k. I know how the anxiety associated with all of this can wear on you. My sister has referred to my condition as "death by 1,000 little paper cuts." It does seem that way at times!


John

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 13th, 2012, 11:47 am
by SwedenEmil
You probably have right, but l did read days ago about a guy with severe pain in arms and legs years before he developed the heredity ALS one, so lm just worried about that.

Haha totally!

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 14th, 2012, 3:03 am
by Floydian
SwedenEmil wrote:but l did read days ago about a guy with severe pain in arms and legs years before he developed the heredity ALS one, so lm just worried about that.

Hi Emil, I'm not a docter but I think it's likely that the severe pain could be related to somehting completely different. If it was a primary symptom in his case then it wouldn't last 'years' in my opninion.

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 14th, 2012, 3:16 pm
by SwedenEmil
Hi!

Thanx to you all for your supporting comforting post during my deepest and darkest moments, your posts have been a light in the dark cave for me. Really! thanx to you all.

l do have an appointment with the Neruro later in Dec, l will post the result after the appointment. Thanx to you all, and l mean it. You r fantastic, keep up with your great work guys!

Kind regards/
Emil :D

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 18th, 2012, 4:11 pm
by Scandinavian girl
good luck to you Emil. yes, let us know. About the vision: I see red/brown dots moving, sometimes smal black dots..sometimes shadows that are not Really there, and sometimes double and blury and sometimes blinking "stars"...

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: November 23rd, 2012, 10:57 am
by vlaf
I`m from sweden as well,
Please read my post about "twinching and pain". I dont have ALS - I am 200% sure. On the other side when I thought I hade ALS I was 100% sure that I´ve got it...no matter what anybody said to me. I was really hard to be convinced
The best thing from my "hard period of ALS-thoughts" is that I am now enjoying life more than I did hefore !

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: December 2nd, 2012, 5:45 pm
by SwedenEmil
vlaf wrote:I`m from sweden as well,
Please read my post about "twinching and pain". I dont have ALS - I am 200% sure. On the other side when I thought I hade ALS I was 100% sure that I´ve got it...no matter what anybody said to me. I was really hard to be convinced
The best thing from my "hard period of ALS-thoughts" is that I am now enjoying life more than I did hefore !



Tjena Vlaf!

Skulle vara kanon om du drog iväg ett mail här på forumet om vad du upplvde under dina fösta symtom, samt hur det ligger till idag, så kan vi maila lite med varandra!

Re: Do l have ALS??? Scared to death! Please help!

PostPosted: December 4th, 2012, 4:17 pm
by vlaf
Jag har skickat lite mail till dig, hoppas du fått dem