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I may have a clue....

PostPosted: October 29th, 2012, 2:26 pm
by angusglover
Guys

Not been on here in a while, so figured I would give an update.

I went for an MRI recently and they found a 1cm syrinx in my neck. Basically it means I have Syringomyelia. This would explain a massive load of my symptoms.

WIll be going to a neuro surgeon soon.....

Stay Well....

Re: I may have a clue....

PostPosted: October 30th, 2012, 4:07 am
by Yuliasir
Hi,
hope there is a kind of cure for that... Thanks for sharing this info, so our fellows might consider another issue to look for.

Re: I may have a clue....

PostPosted: October 30th, 2012, 5:10 am
by TwitchyDoc
So you have had no facial/bulbar twitching I guess. I thought about the same (I had very small finding in the neck spine too) but as my tongue twitch, it cannot be that.

Re: I may have a clue....

PostPosted: October 30th, 2012, 9:43 am
by BFSBurger
There is *always* a cause. Even with "benign" conditions. Glad to see you may have identified yours.

Re: I may have a clue....

PostPosted: October 30th, 2012, 10:45 am
by Jujulia
I'm curious... was that your first (neck/spine) MRI?

Re: I may have a clue....

PostPosted: October 30th, 2012, 12:01 pm
by angusglover
Hi

I had an MRI of head and neck back in 2006 and this was not picked up so I can only assume it was not there. I did have facial twitching, basically I have had twitching everywhere.

The only "cure" for this is an operation but that in itself has risk and scares me. It does explain the weakness in arms, pain in arms and torso, neck stiffness and also to an extent the breathing issues.

Will find out soon what they intend to do.

Stay Well guys.