Something weird or common with BFS?

Information about how to manage or reduce the severity of BFS symptoms

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Something weird or common with BFS?

Postby Floydian on September 25th, 2012, 6:05 am

Today I have a new experience and I was wondering if it's common with bfs?
As far as I know I have not felt or seen any twitch today but my initial burning nerve pain is flaring up again.
For me twitching was never a primary symptom to me but I was wondering if it's something I should worry about?
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Re: Something weird or common with BFS?

Postby SuziQ on September 25th, 2012, 7:21 am

Floydian wrote:Today I have a new experience and I was wondering if it's common with bfs?
As far as I know I have not felt or seen any twitch today but my initial burning nerve pain is flaring up again.
For me twitching was never a primary symptom to me but I was wondering if it's something I should worry about?


Yes, normal. Lots of folks report burning sensations.

Although we hate to lump every symptom under the BFS heading, if you are having any sort of "nerve" irritation, it certainly is attributable to BFS. If you are concerned, you can always ask your neuro about it, but especially since you recall having had this before during your BFS journey, there is no call for alarm.

My twitches were never my primary symptom either. I say that, because I had severe weakness and tremoring, and although I was constantly fasciculating, that didn't torment me emotionally as the other two did. Now I have rare twitches and even rarer tremors.

I hope this helps to ease your mind.
Blessings,
Sue
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Re: Something weird or common with BFS?

Postby SamanthaTX on September 27th, 2012, 7:45 pm

I may not be any help because we know that I am a paranoid mess buuuuuuut, my left shin and the top of my left foot burn all the time...and that's where my most 'worrisome' twitch is.
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Re: Something weird or common with BFS?

Postby mike fla on September 27th, 2012, 10:09 pm

When you have BFS everything is weird but common among other BFS sufferers.
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