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Frequent in shoulders?

PostPosted: January 17th, 2012, 1:57 am
by TwitchyDoc
Hi,
Has anyone had twitching in both shoulders often? For me, its pretty often and triggered by arm movement..I am worrying again :( pls help

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 2:23 am
by chrissi
Yes, definately, each time I lay on one of my shoulders or I hold up my arm and then relax it, my shoulders and my armpits will start to twitch

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 3:15 am
by twitcherHH
Hi!
Hi!

TwitchyDoc wrote:Has anyone had twitching in both shoulders often? For me, its pretty often and triggered by arm movement..I am worrying again :( pls help


Yes, I get them too. A lot. When moving my arm after some rest. My latest Hotspot is in my throat, btw. Really annoying. And sometimes I even get chest-cramps if I violently strech my arms.

I'm not a doctor, but this is what I know: Your shoulder-twitches might be a symptom of ALS, and they might of course be benign. You can't visually tell them apart when they occur in otherwise normally functioning muscles. So they are basically useless if you want to diagnose yourself. Get an EMG if you're worried. I bet that they are a symptom of your anxiety, especially when you concentrate so much on them.

All I know is that it really doesn't help my anxiety when you got all my symptoms and worry about them when you're a doctor. I've had all this for many years and have had many EMGs by now, if that reassures you ;-).

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 3:21 am
by Shanny63
I also get shoulder twitches very often twitchy doc...I've had a clean emg and two clean neuro exams...try not to let it make u anxious....my motto is a twitch is a twitch is a twitch...

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 4:01 am
by TwitchyDoc
HH twitcher, what do you mean that they can be symptom of ALS? That is what I am affraid of (textbooks suggest to look for them in shoulder grindle). But more of you have them, I feel better. And I am reaching 5ht year!

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 5:34 am
by Shanny63
Hi twitchy doc, not my business to say but...reading text books about ALS is as bad as dr google....it's not going to help your anxiety...in fact I think even u will agree it has increased it again...the one thing every dr and neuro has told me that rings true....if I was a bit dumber I'd be happier......best wishes my friend Shannon

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 6:18 am
by twitcherHH
TwitchyDoc wrote:HH twitcher, what do you mean that they can be symptom of ALS? That is what I am affraid of (textbooks suggest to look for them in shoulder grindle). But more of you have them, I feel better. And I am reaching 5ht year!


Let's look at it statistically: Twitches are a bad predictor for ALS, but health anxiety, medical knowledge and five years of twitching strongly suggest BFS. To me, this looks like textbook case, actually.

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 7:38 am
by TwitchyDoc
TwicherHH, I just have a feeling that no many people have this..maybe I am wrong (I hope). Very often I feel my shoulders twitching in the front or back, often with left arm. I know after nearly 5 years I should be fine, but I have too much knowledge due to study which is hard to ignore.

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 7:49 am
by bobajojo
Tdoc,
I get this so much that I don't even notice it anymore. Both shoulders pop at the same time. Sometimes, just one shoulder, sometimes the other, but I get it in both shoulders quite a lot. -Matt

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 7:50 am
by twitcherHH
TwitchyDoc wrote:TwicherHH, I just have a feeling that no many people have this..maybe I am wrong (I hope). Very often I feel my shoulders twitching in the front or back, often with left arm. I know after nearly 5 years I should be fine, but I have too much knowledge due to study which is hard to ignore.


I've also read that you look for (constant) twitching at the shoulders. Because it's very visible there when present - it's a muscle that covers a huge area. I haven't heard that the fact that you twitch there has some special significance.

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 10:40 am
by Wells05
tw do not worry! I know how ur fealing though, my shoulders twitch allot mainly my right though. As for al's twitching in shoulders DO NOT EVEN PUT UR MIND THERE! I will tell u I know of someone who did in fact have al's and he ONLY I mean ONLY twitched in one shoulder and NOWHERE else! So with that said u have 0 percent chance of a worry! But to add to that this guy had other issues with the shoulder also. u are totally good :) Ashley
p's.......it's snowing in Oregon yay!!!!! so so excited! we never get snow

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 10:52 am
by wjjw
TwitchyDoc wrote:TwicherHH, I just have a feeling that no many people have this..maybe I am wrong (I hope).

Yes, you're wrong. Lots of people twitch there. It was a frequent hot spot of mine for years, and YES I could trigger it by doing anything that involved my shoulder. Shoulder, neck, scalp, back, abs, triceps, biceps ... what's the difference? There is absolutely none.

TwitchyDoc wrote:but I have too much knowledge due to study which is hard to ignore.

You're problem isn't too much knowledge. It's that you've wrongly convincing yourself that your BFS symptoms are unusual when in fact they are not.

I'm prescribing some daily relaxation exercises for you doc, that's all you need. :wink:

Cheers,
Bill

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 11:04 am
by Wells05
wjjw wrote:
TwitchyDoc wrote:TwicherHH, I just have a feeling that no many people have this..maybe I am wrong (I hope).

Yes, you're wrong. Lots of people twitch there. It was a frequent hot spot of mine for years, and YES I could trigger it by doing anything that involved my shoulder. Shoulder, neck, scalp, back, abs, triceps, biceps ... what's the difference? There is absolutely none.

TwitchyDoc wrote:but I have too much knowledge due to study which is hard to ignore.

You're problem isn't too much knowledge. It's that you've wrongly convincing yourself that your BFS symptoms are unusual when in fact they are not.

I'm prescribing some daily relaxation exercises for you doc, that's all you need. :wink:

Cheers,
Bill

Bill I have to defiantly agree with u 100 percent. If ur in this over two years it's now our fault! it's our own mind twisted over this, I'm very thankful for people on this board for helping me realize this, two in particular ( John and matt) thank u for opening up my eyes! Ashley

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 3:51 pm
by Ghayes420
Twitchy D. I hate seeing you come on here in a worry because it makes me a bit uneasy. I think it is because I respect your knowledge and your ability to research. I also think we are a bit similar with the fact that we both have a little bit of pessimist in us and that we both have read entirely too much on the topic of BFS and ALS.

That being said I would also like to chime in and say that the back of my shoulders on both sides continues to be one of th shot spots on my body. It always seems to be the same fiber. The one the runs down the back of the shoulder from the trapezius and connects to the tricep. This fires on my quite often through the day. Only my calves are more active.

TDoc, I have a strong suspicion at we have read the exact same articles on both subjects. I also have spoken with you before about Dr. Singh and his interpretation of BFS. Without going into detail I think you will agree that he is probably the most pessimistic neurologist on the topic of benign fasciculations. If you agree with this, like I am sure you will, then certainly you know that you are outside of even his super silly "monitoring period"! So even the most pessimistic neurologist in the world who co-authored the report we all hate to discuss, would even dx you with BFS and nothing else. That alone should give you peace of mind.

Please stay in touch with us and keep us updated. It is good to have you as part of the community, even if it does occasionally make me cringe. :)

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 6:45 pm
by wjjw
Ghayes420 wrote:Twitchy D. I hate seeing you come on here in a worry because it makes me a bit uneasy. I think it is because I respect your knowledge and your ability to research.

And I hate seeing anyone on here worrying when they shouldn't be. With regard to your research abilities, I think your anxiety is obscuring your ability to see things clearly in this regard. How else could you explain your inability to recognize shoulder twitching as a common BFS symptom!?!

Ghayes420 wrote:I also think we are a bit similar with the fact that we both have a little bit of pessimist in us and that we both have read entirely too much on the topic of BFS and ALS.

I would be willing to bet that I've done as much, if not more research than both of you on these topics. And that has made me very optimistic. This includes analyzing and dissecting every "study" that has been brought up on this site in the past 6.5 years, and frequent visits to read hundreds of posts on als forums in response to someone panicking and dragging bits and half bits of "facts" back here. In every rare or not-so-rare instance that might potentially cause concern to a BFS'er, there was always something clearly different that was being overlooked. And BTW, I've personally known several excellent doctors who were notoriously bad at analyzing research papers and trends. Just saying…

Twitchy Doc, my prescription for daily relaxation exercises stands. And it will only help your research abilities. :wink:

Cheers,
Bill