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Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 6:52 pm
by johnnythejet
wjjw wrote:
Ghayes420 wrote:Twitchy D. I hate seeing you come on here in a worry because it makes me a bit uneasy. I think it is because I respect your knowledge and your ability to research.

And I hate seeing anyone on here worrying when they shouldn't be. With regard to your research abilities, I think your anxiety is obscuring your ability to see things clearly in this regard. How else could you explain your inability to recognize shoulder twitching as a common BFS symptom!?!

Ghayes420 wrote:I also think we are a bit similar with the fact that we both have a little bit of pessimist in us and that we both have read entirely too much on the topic of BFS and ALS.

I would be willing to bet that I've done as much, if not more research than both of you on these topics. And that has made me very optimistic. This includes analyzing and dissecting every "study" that has been brought up on this site in the past 6.5 years, and frequent visits to read hundreds of posts on als forums in response to someone panicking and dragging bits and half bits of "facts" back here. In every rare or not-so-rare instance that might potentially cause concern to a BFS'er, there was always something clearly different that was being overlooked. And BTW, I've personally known several excellent doctors who were notoriously bad at analyzing research papers and trends. Just saying…

Twitchy Doc, my prescription for daily relaxation exercises stands. And it will only help your research abilities. :wink:

Cheers,
Bill


This community has missed you, Bill!

Re: Frequent in shoulders?

PostPosted: January 17th, 2012, 11:45 pm
by Ghayes420
wjjw wrote:
Ghayes420 wrote:Twitchy D. I hate seeing you come on here in a worry because it makes me a bit uneasy. I think it is because I respect your knowledge and your ability to research.

And I hate seeing anyone on here worrying when they shouldn't be. With regard to your research abilities, I think your anxiety is obscuring your ability to see things clearly in this regard. How else could you explain your inability to recognize shoulder twitching as a common BFS symptom!?!

Ghayes420 wrote:I also think we are a bit similar with the fact that we both have a little bit of pessimist in us and that we both have read entirely too much on the topic of BFS and ALS.

I would be willing to bet that I've done as much, if not more research than both of you on these topics. And that has made me very optimistic. This includes analyzing and dissecting every "study" that has been brought up on this site in the past 6.5 years, and frequent visits to read hundreds of posts on als forums in response to someone panicking and dragging bits and half bits of "facts" back here. In every rare or not-so-rare instance that might potentially cause concern to a BFS'er, there was always something clearly different that was being overlooked. And BTW, I've personally known several excellent doctors who were notoriously bad at analyzing research papers and trends. Just saying…

Twitchy Doc, my prescription for daily relaxation exercises stands. And it will only help your research abilities. :wink:

Cheers,
Bill



Hi Bill, thank you very much for staying in touch with the board and providing us with your confident insight on the topic of BFS. Please excuse me if I came across in the wrong manner in regards to my nervousness about BFS as a whole. This is obviously anxiety as you have pinpointed, however being at this for only 5 months vs. 5 years (like tDoc) I think may give my still ever lingering, occasional irrational 'fear' a warranted pass. I am gonna take a guess that you were a doubter at one time as well. Thanks once again for coming back and letting us know that those doubts are definitely nothing but irrational thoughts and should be treated as so. Many thanks and God Bless.
Kindly,
Greg

Re: Frequent in shoulders?

PostPosted: January 18th, 2012, 12:33 pm
by Spencerryan1
Greg,

I have been dealing with this benign twitching for a little over a year and I still have my doubts and fears.

Re: Frequent in shoulders?

PostPosted: January 19th, 2012, 7:52 pm
by cenkay.a
td, i cannot believe you are worrying about shoulder twitching after the duration you've had bfs?!?! comeon maaaan! its just a shoulder twitch, i don't understand why you have an obsession with finding areas that als patients twitch more frequently, because as far as i'm aware its a load of ball crap, and im highly aware :lol:


take care TD :)

Re: Frequent in shoulders?

PostPosted: February 14th, 2012, 5:18 am
by edado69
I am myself today very disturbed by a rather powerful and constant twitch behind my right shoulder on the left, twitching just above the left elbow. At night I have experienced some cramps to my feet. 4 years 11 months on, day more day less, I do understand fears and distress this condition may cause.

Re: Frequent in shoulders?

PostPosted: February 15th, 2012, 3:08 pm
by bobajojo
I have to agree with some of the other posters in that I don't understand the worry of one twitch versus another. Tongue twitches, shoulder twitches, thigh twitches... Why does it matter? Without true weakness they are all the same. I get pops and rapid twitches all day long and all over. I get several shoulder twitches every single day, I can't even count them.

Re: Frequent in shoulders?

PostPosted: February 25th, 2012, 7:38 am
by GD13
Is a single shoulder twitch more worrisome than multiple twitches? Isolated to only one hot spot?

Re: Frequent in shoulders?

PostPosted: February 25th, 2012, 8:38 am
by bobajojo
Greg,
That's called a hotspot. I had one in my thigh that lasted nearly two months. I can't even say that its gone because it still twitches daily but just not continuously like it did for those two months. I have one in my eye right now thats been nearly a month. If you can still function using your shoulder and lift weights like you are, no worries. I know its worrisome, but please rest assured that its all very consistent with BFS. -Matt

Re: Frequent in shoulders?

PostPosted: February 25th, 2012, 9:16 am
by GD13
Thanks Matt. It's just that it seems like nmost on here with hot spots, they had twitching all over the body, not a single hot spot without other twitching elsewhere.

I have had eyelid twitching in the past, just never linked the two in my mind. Seems crazy to only now have a single shoulder twitch all the time. Although it wasn't twitching when I woke up this morning, for about 2 hours, no twitching. Then at breakfast pow, full on twitching and popping and hasn't stopped yet

Re: Frequent in shoulders?

PostPosted: February 25th, 2012, 9:22 am
by GD13
Now that I'm hyper sensitive to everything, I also noticed I was talking to my daughter this morning after breakfast and it felt like a jolt from my shoulder that sent my head to jerk to the side ( fast jerk to where my left ear moved to my left shoulder)

Re: Frequent in shoulders?

PostPosted: February 27th, 2012, 7:29 am
by chrissi
GD13, kolts and jerks are a very common part of BFS. Jerking and jolting that moves limbs/hands/feet and for sure the head are never part of ALS, there was sometime an EMG specialist linked on here that said if a person describes jerking limbs with his fasciculations, this practically rules out ALS.

Re: Frequent in shoulders?

PostPosted: July 14th, 2012, 12:40 pm
by Pandy
GD13 wrote:Thanks Matt. It's just that it seems like nmost on here with hot spots, they had twitching all over the body, not a single hot spot without other twitching elsewhere.

I have had eyelid twitching in the past, just never linked the two in my mind. Seems crazy to only now have a single shoulder twitch all the time. Although it wasn't twitching when I woke up this morning, for about 2 hours, no twitching. Then at breakfast pow, full on twitching and popping and hasn't stopped yet


I also have one shoulder twitching only. No other twitches. Makes me really nervous but I can still lift heavy weights so I try to relax, but its hard....