Prednisolone

Information about how to manage or reduce the severity of BFS symptoms

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Prednisolone

Postby nonstop on September 18th, 2011, 9:55 pm

I have also been looking at 3 possible syndromes that match my numerous symptoms: Isaacs syndrome, Morvan's syndrome and Sjogrens syndrome. Of course, they all share similarities with my symptoms so I can't really determine on my own which might be afflicting me. But I did see that immune response is a connections between these syndromes. So I am trying a low dose of Prednisolone to see if a little immune suppression might help.

I will update in a week or two.
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Re: Prednisolone

Postby mommylondon on September 18th, 2011, 11:54 pm

Call me crazy but a steriod is one of the last things I would be putting in my body with having BFS...the other syndromes you named off are insanely rare, especially Morvan's Syndrome....Is your doctor prescribing this???
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Re: Prednisolone

Postby chrissi on September 19th, 2011, 1:40 am

I'm on prednisolone right now for allergic reaction. But didn't do anything for my twitchig. I've been on Pred twice before , 9 months each time, and I had the feeling I cought every germ flying around with it.
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Re: Prednisolone

Postby raindog on September 19th, 2011, 8:55 am

My neuro has all but in name diagnosed me with Neuromyotonia when i asked about streroid and plasmapheresis he said because i have no abnormalities in my bloodwork there is no point and their long term use would be more dangerous to my body than the condition i have.
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Re: Prednisolone

Postby dreadpirateroberts on September 20th, 2011, 9:07 am

My neurologist has suggested this as a short term trial as he thinks that my form of BFS is due to an auto-immune issue. That is, after a flu bug, my auto-immune system wouldn't turn off and began attacking muscle nerves at random. If this is true, the prednisone may limit the immune system from attacking the muscle nerves. However, I agree that this is not likely a long term solution but it might shed some light on whether it really is an auto immune issue. Let us know how this works out.
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Re: Prednisolone

Postby johnny999 on October 11th, 2011, 2:13 am

Dont know if this helps, but when in my "disaster research" stage i convinced myself I had Morvan's, also. I didn't think i had ALS like most people here, but thought i had a brain abcess and/or brain tumor and/or lyme and/or several rare diseases. But eventually, after months of avoiding sleep almost entirely, my mind eventually returned to homeostasis as the void of disease-thinking was filled with exercising and working.

Have you tried a clean diet, nonstop? e.g. limited grains, mainly fruits, veggies, meats, and herbs + spices.
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Re: Prednisolone

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