by vlaf on April 11th, 2011, 12:14 pm
I am a male, 40 years old and got a wife and 4 beautiful kids. My main language isn`t English, but I hope you can understand me anyway.
I am really afraid I have got als. It all started in dec 2010, I ´ve got a terrible pain in my left foot, (“under†the foot) so I couldn´t walk or anything and painkiller-pills didn´t get rid of the pain, but after a week it all went away.
In February 2011 my left forearm started to twitch, a couple of days later my left upper eyelid also started to twitch, then after another couple of days my both calves started to twitch. I then got really scared of als, after reading of all symptoms on the Internet. Then I had a depression and went to hospital for 2 weeks and started getting pills for it. For a couple of weeks my index finger on my left hand started to be numbness, also some fingers on my right hand got numbness. Often when I wake up in the night I can feel this numbness. I can also feel pain in my arms, fingers, left calf, left foot as well a tingling under my left foot. My sleeping is ok, but sometimes during night I am warm and sometimes I am cold, don’t know if it depends on my depression.
I can also feel other twitches all over my body, or if i am imaging them, but i cant feel them so often, for examples in my butt, thighs, lips and my back. During only one day I had some twitching on my left hand, between index finger and thumb but it stopped. All my symptoms often comes after exercise, for ex walking, or just streching my legs in my bed when i wake up in the morning, or using my arms and hands, my eyelid twitch also comes in exercise, which is a bit weird. I have done MR and EEG, EMG tests in my whole body–nothing have been found, everything ok and my neurologist says I don’t have to be worried about als, but I can´t believe him, my symptoms are for me so als, but I have no weakness. Can you please answer my questions:
1.Twitching in als, are they constant or are they also coming after excersice?
2.Is EEG, EMG-tests 100%, or can I have als anyway, meaning that it´s not visible in the tests yet?
3.Can ALS be so aggresiv, meaning could it be spread to my different body parts so fast ? ( during 4-5 weeks), or does als just starts in only one part of the body, feeling twitches, weakness and then it goes for another?
I am so worried I can´t go to work or be with my kids in a normal way, afraid of dying in als, please please help me
vlaf