About Bart1

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Re: About Bart1

Postby RobbieBfs on July 7th, 2010, 2:21 pm

:mrgreen:
Last edited by RobbieBfs on October 28th, 2010, 10:24 am, edited 1 time in total.
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Re: About Bart1

Postby DoubleD on July 11th, 2010, 12:14 pm

I have been around this board AND the als boards for years. (Thank God i finally quit going to the als boards). Bart is not the first one to do these things, and definetaly not he last! I mean no disrespect to Bart but some people get to a point that they are convinced they have als or something else horrible, even though doctors tell them otherwise. They cannot disconect from als. When you do countless hours of your own research you start to believe you are smarter then the specialists. I have seen other post about people who were convinced 100% that they had als even though they did not have a diagnosis. I feel bad for bart.

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Cramps, tingling, buzzing, and a host of other weird things
Until you own your BFS, you will never disown als
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Re: About Bart1

Postby edado69 on July 12th, 2010, 7:14 am

There is a lot we don't know about BFS and, broadly speaking, fasciculations. I have some ideas, but it really does not matter! It is clear that they (the fasciculations...) have caused a lot of distress to many people because of the fear of what they may mean more than anything else. It happens that inevitably this is the fear of "the worse case scenario", albeit the reassurances of many neurologists. I remember Bart1 very well and most certainly his fears have been sky high from the very beginning. I'm not aware of him being diagnosed with anything and the changing status above described as well as the lack of posts is in keeping with that. Bottom line is: the fear is really what has been freezing the thoughts of most of us and this is not quite right.
In 3 years and half of dealing with BFS, I can confirm that nothing has changed as far as my physical performances go.
Equally, I've understood that fasciculations are far more common than what I've initially supposed to be, but that most people would not care about it.
And, as far as I know, is plenty of old timer such as myself, doing well.
Fasciculating from the 25/03/2007 (as accurately as I can recall!...)
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Re: About Bart1

Postby Noturnus on September 20th, 2010, 8:46 am

I check for bart1 posts of als forums for a long time.
At a time I saw his profile with the date he was diagnosed and a description saying he was diagnosed with ALS.
Another day the date was gone but the text was still saying he was diagnosed.
Today I checked it again and this is what I saw:

City
Brussels
State or Province
Brussels
Country
bel
When were you diagnosed?
00/0000
How has ALS/MND impacted you?
I am in the process of being diagnosed with ALS/MND

He went to diagnosed to "on the process of being diagnosed". I think with ALS it is the opposite. You enter the process of being diagnosed and after that you get diagnosed.
The time is passing and he is still with vague signs.
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Re: About Bart1

Postby MarioMangler on September 20th, 2010, 9:23 am

He has had vague signs longer than just about everyone on this board. He was around here a lot earlier than I was.
BFS FAQ:
1. No, that's not bulbar
2. No, the location doesn't matter
3. Yes, we have all had that symptom
4. No, you're not the exception
5. No, that's not ominous
6. No, you don't need an EMG
7. Yes, you will be fine
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Re: About Bart1

Postby basso on September 20th, 2010, 7:47 pm

Bart1 was a big time bullshyter, just so you know, and had many aliases. For all I know he is lostboy now. No MND, no how!

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Re: About Bart1

Postby Barbie800 on September 20th, 2010, 7:50 pm

Oh no! We are back talking about Bart1 again?
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Re: About Bart1

Postby fox2run on September 21st, 2010, 6:42 am

Hmm, Bart1 owe me a belgium beer, and one day Im coming and collect it...

No, he doesnt have any ALS. Actually Bart1 have already had fascics as long as the average lifespan of ALS-sufferers. But he got a MAJOR health anxiety. He has transformed into a pale-computerscreen-OCD-zombie. Im sorry, Bart1/lostboy, but thats the truth. Why dont you get a REAL life, man? You are playing with others and have done so for more than two years. Please behave. Not for your - but for other peoples sake. :|
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Re: About Bart1

Postby Noturnus on September 21st, 2010, 7:48 am

I understand what he is suffering and I know he don't want to hurt anyone. I am happy to know he is still with vague symptoms and I hope he will understand this. I suffer from health anxiety and I know very well how hard is to live with this. I know BFS is the gasoline anyone with hypochondria needs to go crazy.
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Re: About Bart1

Postby lindahcohen on September 23rd, 2010, 1:53 pm

I think this thread represents the MOST DANGEROUS part of BFS. The anxiety is causes can wreck your body, mind and soul. This poor guy actually believes he has a fatal disease and is acting as such. His reality must be a living nightmare. So, we have a choice. Go down that road and suffer as though we have something we don't, OR thank God or whomever or whatever we worship that we are FINE, that our symptoms are annoying and painful and make us feel less than "normal", but they are benign. We can learn from each other's experiences and lead wonderful lives.
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Re: About Bart1

Postby fox2run on September 27th, 2010, 6:56 am

Noturnus wrote:I understand what he is suffering and I know he don't want to hurt anyone. I am happy to know he is still with vague symptoms and I hope he will understand this. I suffer from health anxiety and I know very well how hard is to live with this. I know BFS is the gasoline anyone with hypochondria needs to go crazy.


I guess most of us have been there, but at some point you just have to stop. And even IF you are a wreck, there is absolutely no reason to post "ifs" and "buts" from ALS-sites to this forum. No need to hurt others. And right so. If you go to ALS-sites, you WILL find people with ALS. And they come in all sizes. And some of those stories WILL suit you, if you want it to.

Im sure it will be the same if you go to brain-cancer forums or heart-diseases forums. I mean - havent you ever lost your breath or had a headache?
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Re: About Bart1

Postby mommylondon on September 27th, 2010, 2:54 pm

Very well put fox2run, I agree 100%
Quote: To mend the hearts of everyone that feels alone.
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Re: About Bart1

Postby Lene on June 27th, 2011, 6:23 am

Noturnus wrote:I check for bart1 posts of als forums for a long time.
At a time I saw his profile with the date he was diagnosed and a description saying he was diagnosed with ALS.
Another day the date was gone but the text was still saying he was diagnosed.
Today I checked it again and this is what I saw:

City
Brussels
State or Province
Brussels
Country
bel
When were you diagnosed?
00/0000
How has ALS/MND impacted you?
I am in the process of being diagnosed with ALS/MND


Bart was years in this process (in his head: the doctors were tired of him, they excluded ALS but he wouldn't believe).
Does he want ALS maybe? I start to wonder.
Twitching évery minute since end of 1988........
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