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PostPosted: March 26th, 2004, 6:24 am
by dwl
It seems to me that in the UK there is a much greater reliance placed on examination findings which then guide which tests are ordered. I've noticed that many people posting from the US seem to have had a whole battery of tests at a very early stage.

On balance I think I prefer the UK system although it does have many other difficulties, most notably a gross lack of funding.


your might be right.

PostPosted: March 26th, 2004, 7:19 am
by eric
but I still think that it maybe warranted just to see if there is a change in chemistry. I am no doctor but I know what Ive been thru.if there is a change then why?

PostPosted: March 26th, 2004, 1:03 pm
by Nole
Could it be bells palsy? My neighbor has it and often has a droopy eyelid????

PostPosted: March 26th, 2004, 2:33 pm
by uber
bells palsy again affects the cranial nerves and makes your face droop...also it wouldnt go away after a nights gets worse and worse over a short space of time.

Also DWL I agree here in the UK we do have a better system i feel in diagnosing neurological conditions. However I dont feel that has anything to do wit neurologists in the US..basically here in the UK we get all our tests free on the NHS (as long as you dont mind waiting) and if your neurologist feels its more urgent he will push the tests through quicker, however all neuro's ive seen in the UK are very quick to dismiss the whole battery of testing like Lumbar Puncture and Evoked Potentitals as nearly every neuro ive seen in the UK will tell you that MRI's, detailed history & visible symptoms noticed via physical testing i.e finger to nose, heel to toe etc, is the gold standard when it comes to diagnosing MS and other similar neurological conditions and that there is no other method as the US you have to pay for em...I think you probably see what im getting at here.

When it comes to EMG's in the UK there is long wait when it comes to routine EMG's, my neuro did tell me that if they are suspecting things like ALS then they are pushed through a lot quicker, but other neuromuscular conditions like MG & Parkinsons etc have a much longer wait on an EMG. In my experience the 2 neuros ive seen have never felt that a EMG has never been needed in cases where patients are presenting with muscle twitches alone without muscle weakness. I've been told time and time again and I hope this goes to re-assure many people on this board that muscle twitching is NOT a presenting symptom with ALS and that muscle twitching is a secondary reaction due to atrophy, which is always picked up to some degree in physical testing and EMG.

PostPosted: March 26th, 2004, 9:25 pm
by garym
I have first hand experience with Bell's Palsy as i suffered from it nearly twenty years ago. It effected the entire left side of my face, caused drooping eye, lips, drooling and loss of use of the muscle there. You might have a very mild case of BP, but i'm pretty sure you don't. The way i first noticed it was that i couldn't whistle anymore. Thankfully for me, it only lasted about 6 months and went away.

Good luck,

Reason for My Twitching Finally...Diagnosed!!!!!!

PostPosted: March 31st, 2004, 1:45 pm
by Twitchlots
Well, this is a good place to announce my diagnosis after twitching for 18 months!!!!! I have been officially diagnosed with Lyme disease. I had been tested previously with basic blood Lyme titers and they came back negative. I also was tested using the Western Blot and it also came back negative, HOWEVER, I have learned that some labs are more proficient than others at processing Lyme tests. After seeking out a top Lyme specialist in Washington, DC, I was tested and my test was sent to Inginex lab in California THE lab to test for Lyme. It came back a flaming positive. I am currently on IV and oral antibiotics and supplements. The twitching has greatly decreased. My diagnosis was and I quote, "A bad case of neurological Lyme disease also affecting the cranial nerves."

I never in a million years dreamed I had Lyme disease but it is finally the answer to the twitching, cramping, spasms, foot pain, jerking, headaches, eye pain, trouble breathing, swallowing and the list goes on. These were my symptoms and everyone can be different.

If anyone has any questions, you can email me at [email protected]


PostPosted: March 31st, 2004, 2:27 pm
by uber
congrats on getting your diagnosis twitchlots now you can concentrate on getting better :)

PostPosted: March 31st, 2004, 4:07 pm
by dwl
Twitchlots = Carolmarie - same email address

How curious!