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PostPosted: December 21st, 2003, 6:23 pm
by uber
Do any of you ever read about myokymia and think it suits the desciption of your twitches more?? I have to admitt then myokymia often sounds more like what I have that fasciculations, but then again sometimes my twitches seem to be more like the dexcription of fasciculations. Still after all this time ive never had an EMG, as its so exspensive here in the UK and the waiting list on the NHS is over a year in my area.

Had some stranges twitches/jerks the other night when watching lord of the rings as some of you may know the movie is on for 3 1/2 hours (Excellent movie btw) and like I often have been getting recently over the last 4 month I got some nasty twitches in my knees, the twitches were so bad it was making my whole leg jerk, literally felt as if somebody was hitting my leg.

PostPosted: December 21st, 2003, 11:48 pm
by twitching man
I also get the jolt almost like lightning sharp jabs. I also think other people with bfs get this.

PostPosted: December 22nd, 2003, 3:41 am
by dwl
My neuro saw my twitching & described it as myokymia. I'm sure that this is what most of us experience rather that fasciculations. Myokymia is not indicative of als/mnd.


PostPosted: December 22nd, 2003, 7:30 am
by uber
Ive seen it mentioned as a symptoms for MS, but what else is it indicatvie of?

PostPosted: December 22nd, 2003, 8:03 am
by Pole
I heard that myokymia is a sympthom of Issac rather than MS or ALS.

I dont think that most of us have myokymia. Myokymia is a very characteristic undulating muscle movement which is not reported often here.

Most of us have single or serial twitches (very light jerks). I also don't think that this kind of muscle activity is a fasciculation, which I believe is random twitching of many muscle fibers (or fascicles) of ONE muscle in the same time. It looks like worms under skin and can be provoke by hitting a muscle. This kind of muscle activity can be benign and without weakness is not a sign of ALS.

I believe that most of us have a kind of hyperexcitability of nerves (propably peripheral). I believe that there could be thousand reasons of that hyperexcitability.

What do you think?


PostPosted: December 22nd, 2003, 9:17 am
by dwl
From my reading of reputable articles & journals on the web it seems that myokymia is a symptom of several conditions including bfs and Isaac's syndrome. BFS is at the mildest end of the spectrum & Isaac's is at the severest end.


PostPosted: December 22nd, 2003, 9:56 am
by garym

I believe the hyperexcitability of the pn's. That would explain muscle pains as well.


PostPosted: December 22nd, 2003, 12:10 pm
by Dale
I don't read-up on anything to discover a condition that best suits my twitching. I prefer my Neuro's description as "benign."

I have however been reading-up on building tree houses. My seven year-old daughter has been bugging Dad for over a year. It's actually pretty interesting. You'd be amazed at the "Trump Towers" design that I'm researching now. Hope my property taxes don't go up next year!


PostPosted: December 22nd, 2003, 12:47 pm
by thetwitchkid

You have the best sense of humor !!

PostPosted: December 22nd, 2003, 4:48 pm
by garym
I guess if i just twitched and had no other symptoms, I would not research either...................No, just to proactive when it comes to my health. By the way, benign just means it's not gonna kill you.

PostPosted: December 22nd, 2003, 11:48 pm
by Ray
The feeling is mutual Gary!