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A Community for BFS Sufferers
Questions About BFS
Moderators: JohnV, Arron, garym
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- Registering as a user - HOW TO GET YOUR ACCOUNT ACTIVATED
by JohnV on February 1st, 2011, 9:59 am - 3 Replies
- 43267 Views
- Last post by garym
on September 29th, 2015, 8:01 am
- Registering as a user - HOW TO GET YOUR ACCOUNT ACTIVATED
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- Why You Don't Have ALS (part 2)
1, 2by Arron on May 29th, 2008, 10:13 pm - 24 Replies
- 77427 Views
- Last post by alex75
on December 4th, 2015, 6:13 am
- Why You Don't Have ALS (part 2)
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- Emails from Profs Carvalho and Eisen
1, 2by Little Lost on October 3rd, 2013, 6:52 pm - 20 Replies
- 22701 Views
- Last post by RGB
on October 2nd, 2014, 12:33 pm
- Emails from Profs Carvalho and Eisen
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- BFS in a nutshell
1, 2by Arron on November 3rd, 2002, 11:20 pm - 25 Replies
- 90272 Views
- Last post by NotMyself
on October 3rd, 2013, 11:10 pm
- BFS in a nutshell
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- PNH website
by wjjw on February 14th, 2006, 10:38 am - 11 Replies
- 16608 Views
- Last post by Spider
on May 29th, 2013, 7:54 am
- PNH website
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- Welcome to the Questions About BFS forum
by JohnV on July 23rd, 2002, 10:45 pm - 0 Replies
- 10943 Views
- Last post by JohnV
on July 23rd, 2002, 10:45 pm
- Welcome to the Questions About BFS forum
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- Hi All Twitch concern along with muscle aches, Anyone?
by ruashark on January 15th, 2018, 8:52 am - 2 Replies
- 853 Views
- Last post by johnnythejet
on March 21st, 2018, 2:59 pm
- Hi All Twitch concern along with muscle aches, Anyone?
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- Question about EMG's?
by Mercfh on March 1st, 2018, 10:29 pm - 1 Replies
- 402 Views
- Last post by misterjuanperalta
on March 5th, 2018, 2:36 pm
- Question about EMG's?
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- Tongue twitch /spasm /cramp
by matthew dolan on August 10th, 2017, 12:27 pm - 1 Replies
- 1360 Views
- Last post by matthew dolan
on September 3rd, 2017, 10:11 pm
- Tongue twitch /spasm /cramp
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- You must read this.
by boatdeck on August 8th, 2017, 7:07 am - 0 Replies
- 1360 Views
- Last post by boatdeck
on August 8th, 2017, 7:07 am
- You must read this.
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- Strange sensation
by Link on November 27th, 2016, 6:36 pm - 2 Replies
- 2454 Views
- Last post by johnnythejet
on January 14th, 2017, 9:13 pm
- Strange sensation
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- Swallowing issue
by Tiredofbfs on October 16th, 2016, 8:37 pm - 2 Replies
- 3286 Views
- Last post by Tiredofbfs
on October 22nd, 2016, 11:10 pm
- Swallowing issue
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- Facial muscles tremoring/twitching?
by Arkansan on October 3rd, 2016, 12:01 pm - 6 Replies
- 3080 Views
- Last post by Arkansan
on October 6th, 2016, 11:05 pm
- Facial muscles tremoring/twitching?
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- Hand Still Cramping and typical twitched HELP
by bhadcaptain on July 26th, 2016, 4:46 pm - 3 Replies
- 2661 Views
- Last post by Yuliasir
on August 6th, 2016, 1:16 am
- Hand Still Cramping and typical twitched HELP
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- Hand Cramps
by bhadcaptain on July 20th, 2016, 4:46 pm - 1 Replies
- 2031 Views
- Last post by Yuliasir
on July 21st, 2016, 12:03 am
- Hand Cramps
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- Question about VGKC antibody
by Scaredlin on February 23rd, 2016, 7:35 pm - 11 Replies
- 4920 Views
- Last post by leaflea
on May 27th, 2016, 1:21 am
- Question about VGKC antibody
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- Shakiness after Hot bath?
by Mercfh on April 22nd, 2016, 4:49 pm - 1 Replies
- 2824 Views
- Last post by Little Lost
on April 23rd, 2016, 7:33 pm
- Shakiness after Hot bath?
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- Numbness after sitting, feels like it's getting worse?
by Mercfh on April 20th, 2016, 6:07 pm - 2 Replies
- 2474 Views
- Last post by Mercfh
on April 22nd, 2016, 4:39 pm
- Numbness after sitting, feels like it's getting worse?
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- One side more sensitive to numbness?
by Mercfh on April 12th, 2016, 5:54 pm - 1 Replies
- 2302 Views
- Last post by Yuliasir
on April 12th, 2016, 11:03 pm
- One side more sensitive to numbness?
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- EXCESS SALIVA -- SCARED
by InvisibleTwitches on March 29th, 2016, 4:07 pm - 5 Replies
- 3841 Views
- Last post by leaflea
on April 2nd, 2016, 2:04 pm
- EXCESS SALIVA -- SCARED
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- New worrisome symptom (buzzing)
by eric77 on November 3rd, 2014, 9:43 am - 5 Replies
- 4390 Views
- Last post by leaflea
on March 31st, 2016, 10:26 am
- New worrisome symptom (buzzing)
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- Hi Old Friends! I choked on thin air yesterday
by InvisibleTwitches on March 23rd, 2016, 11:38 am - 14 Replies
- 4666 Views
- Last post by InvisibleTwitches
on March 25th, 2016, 6:19 pm
- Hi Old Friends! I choked on thin air yesterday
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- What has been your longest hotspot?
1, 2by bobajojo on July 28th, 2014, 6:50 am - 15 Replies
- 8580 Views
- Last post by Karenmg
on March 23rd, 2016, 6:02 pm
- What has been your longest hotspot?
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- Resting tongue twitch, really scared.
by Arkansan on March 15th, 2016, 4:03 pm - 0 Replies
- 2892 Views
- Last post by Arkansan
on March 15th, 2016, 4:03 pm
- Resting tongue twitch, really scared.
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- BFS Recovery Forum
by guitarguy11 on March 8th, 2016, 10:17 am - 0 Replies
- 2570 Views
- Last post by guitarguy11
on March 8th, 2016, 10:17 am
- BFS Recovery Forum
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- Terrified, pain in knees back other issues.
by Arkansan on February 20th, 2016, 10:51 pm - 12 Replies
- 4665 Views
- Last post by Yuliasir
on February 26th, 2016, 1:57 pm
- Terrified, pain in knees back other issues.
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- Anyone ever had these symptoms
by Kevo5684 on February 15th, 2016, 1:11 pm - 1 Replies
- 2832 Views
- Last post by leaflea
on February 19th, 2016, 11:57 pm
- Anyone ever had these symptoms
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- intercostal area
by wookiette on November 21st, 2015, 4:28 am - 1 Replies
- 2970 Views
- Last post by Strive
on February 1st, 2016, 7:55 pm
- intercostal area
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- experience with Amantadin?
by German2 on January 31st, 2016, 4:14 am - 4 Replies
- 2764 Views
- Last post by German2
on January 31st, 2016, 4:58 pm
- experience with Amantadin?
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- Symptoms check!
by Mercfh on January 19th, 2016, 10:13 am - 0 Replies
- 3526 Views
- Last post by Mercfh
on January 19th, 2016, 10:13 am
- Symptoms check!
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- Cold hands
by Scboy on January 8th, 2016, 6:16 pm - 1 Replies
- 3705 Views
- Last post by leaflea
on January 9th, 2016, 12:24 am
- Cold hands
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- Sleep Study
by PEZZA69 on January 4th, 2016, 4:47 pm - 8 Replies
- 4399 Views
- Last post by Little Lost
on January 7th, 2016, 9:13 pm
- Sleep Study
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- How many of you have pain?
by Arkansan on December 8th, 2015, 1:00 pm - 4 Replies
- 4252 Views
- Last post by pinprick
on January 3rd, 2016, 2:49 pm
- How many of you have pain?
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- oh damnn, what do you think???
1, 2by englishdave on January 26th, 2012, 8:28 am - 16 Replies
- 12404 Views
- Last post by guitarguy11
on December 10th, 2015, 12:22 pm
- oh damnn, what do you think???
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- If I close my eyes tight, start to twitch
by Scaredlin on December 1st, 2015, 7:36 am - 2 Replies
- 3259 Views
- Last post by Yuliasir
on December 2nd, 2015, 1:12 am
- If I close my eyes tight, start to twitch
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- Updated Symptoms
by Pascal35 on November 22nd, 2015, 10:15 pm - 2 Replies
- 3446 Views
- Last post by Pascal35
on November 29th, 2015, 4:38 am
- Updated Symptoms
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- OMG. Im back. Oldtimer here - will soon have dirty EMG
by Scaredlin on November 4th, 2015, 8:02 pm - 9 Replies
- 6433 Views
- Last post by German2
on November 21st, 2015, 4:22 pm
- OMG. Im back. Oldtimer here - will soon have dirty EMG
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- Insight would be appreciated!
by Dustyn19 on June 24th, 2013, 5:00 pm - 7 Replies
- 5890 Views
- Last post by pinprick
on November 11th, 2015, 1:15 pm
- Insight would be appreciated!
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- Burning mouth syndrome anyone??
1, 2by sanje77 on September 28th, 2015, 11:52 am - 16 Replies
- 8971 Views
- Last post by aditzvetkova
on November 10th, 2015, 3:55 pm
- Burning mouth syndrome anyone??
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- Can you facilitate a Twitch by body positioning?
by RIno468 on September 24th, 2015, 11:46 am - 4 Replies
- 5194 Views
- Last post by guitarguy11
on October 19th, 2015, 12:47 pm
- Can you facilitate a Twitch by body positioning?
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- Abdominal Issue
by lostinneverwhere on October 14th, 2015, 3:34 pm - 0 Replies
- 3284 Views
- Last post by lostinneverwhere
on October 14th, 2015, 3:34 pm
- Abdominal Issue
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- Started again - 2 years update
by Pascal35 on September 25th, 2015, 3:29 am - 11 Replies
- 6693 Views
- Last post by Pascal35
on October 13th, 2015, 3:47 pm
- Started again - 2 years update
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- Sit-Ups? Shaking like a wet dog
by Beast216 on October 8th, 2015, 12:28 pm - 2 Replies
- 3711 Views
- Last post by veryworried123
on October 12th, 2015, 10:41 pm
- Sit-Ups? Shaking like a wet dog
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- First outcome muscle biopsy
by German2 on September 28th, 2015, 11:48 am - 3 Replies
- 3813 Views
- Last post by German2
on September 29th, 2015, 12:17 am
- First outcome muscle biopsy
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- Cymbalta/Duloxetine and Sodium Levels?
1, 2by Xina535 on September 17th, 2015, 2:24 pm - 15 Replies
- 7402 Views
- Last post by Xina535
on September 26th, 2015, 7:38 am
- Cymbalta/Duloxetine and Sodium Levels?
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- Feel tongue twitch while I talk
by Twitchy82 on September 11th, 2015, 7:51 am - 3 Replies
- 3857 Views
- Last post by Xina535
on September 14th, 2015, 8:30 am
- Feel tongue twitch while I talk
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